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Adult Diagnosis Leicester General

Cornerflag1995

Hi

I am a 19 year old girl who is studying at university. I have tried for over a year now to get a diagnosis. In my local mansfield area I was sent to a general psychatrist who gave me an AQ in the first appointment and on the sending said he couldn't gove a diagnosis but refused to give a reason why. He was incredibly unhelpful for the entire experience. He was contradictory and was more interested about my foster care involvement and when I had seen a routine CAHMS check with social services at 17.

Because I was in care I have no developmental history that is available from my parents as i have no seen them for years and have no contact with. The Psychiatric looked into my medical records and these nothing substantial enough in there. He said he would send a letter to us explaining his reasons but I'm 9weeks this has never come.

i know have a referral with Dr Terry Brugha at leicester and I'm just looking for some reassurance that he will actually listen to me and give me a thorough assessment and listen to me issues.

thanks

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  • Former Member
    Former Member

    Firstly to address Morgana's question: The AQ test seems to be a good indicator of whether you have the underlying brain wiring differences that lead to us having problems. I wanted to understand what the different scores might mean so I asked a number of colleagues at work to do the test. This showed a number of them were on the spectrum (scores in the 20s) which was no surprise as I work in IT. One colleague scored 34 and he said that he had always known that he was different but had managed himself well and considerately during adult life and was having a good career and no real issues. I'm also well aware that other people on this forum can have severe difficulties whilst scoring similar or lower scores. We are all different and I think our environment can be crucial in determining how well we cope. I score 43 and have had repeated issues through adulthood but have been relatively successful - I have had more than my share of job moves but have stayed in work albeit never quite reaching my full potential. It seems to me that the AQ score is a good starting point for starting to decide whether autism is in the mix.

    CornerFlag: I would be extremely surprised if you don't get a diagnosis. Your story is absolutely typical of those I have read on the forum and from reading round the subject for the last year. If you print out your last post and take that in with you then I think the Prof should be well impressed. Having a piece of paper with you can make the job of explaining your problems much easier - I took a list of issues with me when I first asked the GP about this and the GP took it from me and then took me seriously.

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  • Former Member
    Former Member

    Firstly to address Morgana's question: The AQ test seems to be a good indicator of whether you have the underlying brain wiring differences that lead to us having problems. I wanted to understand what the different scores might mean so I asked a number of colleagues at work to do the test. This showed a number of them were on the spectrum (scores in the 20s) which was no surprise as I work in IT. One colleague scored 34 and he said that he had always known that he was different but had managed himself well and considerately during adult life and was having a good career and no real issues. I'm also well aware that other people on this forum can have severe difficulties whilst scoring similar or lower scores. We are all different and I think our environment can be crucial in determining how well we cope. I score 43 and have had repeated issues through adulthood but have been relatively successful - I have had more than my share of job moves but have stayed in work albeit never quite reaching my full potential. It seems to me that the AQ score is a good starting point for starting to decide whether autism is in the mix.

    CornerFlag: I would be extremely surprised if you don't get a diagnosis. Your story is absolutely typical of those I have read on the forum and from reading round the subject for the last year. If you print out your last post and take that in with you then I think the Prof should be well impressed. Having a piece of paper with you can make the job of explaining your problems much easier - I took a list of issues with me when I first asked the GP about this and the GP took it from me and then took me seriously.

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