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Let down by the system - can you help us ??

K2ako

Hi

My son is 12 and in mainstream school.

We are waiting for a formal diagnosis which is being done by the autism pathway ( behind closed doors -  not sure if this is common practice or not) we have been waiting for this for 2.5 years, no one seems to want to help us or point us in the right direction to what we need to get done for him. His behaviour was recoginsed by the primary school SENCO, but it is getting worse. His case goes to panel next month (may 28th)

I am at the end of my tether as may son is acting up at school ( mainly because despite me telling school of his issues they are still causing problems with him), teachers making him anxious by not reading the notes on him,not letting him speak or giving hima a chance to try to speak,  he is now becoming violent at school at objects and people.

The school also decided on friday in one of his lessons to flash up on the smart board a list of the children in teh class with special needs ( my son being one of them ) and what their issue was for all to see.

He is now being called a special needs r£%!$d which that word I hate with a passion...

And school ar wondering why he is hitting back now the kids in the class are picking on him because they disclosed this information to the whole class.

every day when coming home from school I have to calm him down from the anxiety the school ahve caused him because they seem to not know what they are doing. i feel like I am on the phone every day to them or at school everyday.

can any one help me I feel let down by the school, the hospital we have no key person to contact school have told me he doesn't need an EHP ( after reading up on this I think he does)

I just feel lost, alone and drained

please can some one reassure me or help me

thanks

worried, tired, scared mum

Parents

  • Hello K2ako,

      Can I just say, I think this is disgracful!

    Firstly, I think you should file a formal complaint to the School. All Schools have a duty of care to the children in their charge and privicy guidelines surrounding a childs special needs information. To publish on a smartboard; in front on the whole class, your childs special needs, is not only a breach of confidentiality, but has seriously compromised your childs safety and mental health as a result. Ask the School for a copy of their formal complaints proceedure and get assitance to file an official complaint to the governing body immediately.

    Secondly, I believe you need more support, as clearly your concerns are not being taken seriously. Have you contacted IPSEA?

    www.ipsea.org.uk/.../services

    They have a helpline and should be able to give you advice on addtional things you can do, toward getting your son diagnosed and correctly supported.

    Sadly, your story is indicative of many parents with children on the spctrum and his reaction to the poor understanding of SEN by the School, is a clear indication that your sons needs are not being met. You should also read the SEN Code of Practice and familiarize yourself with your rights and that of your sons.

    www.gov.uk/.../send-code-of-practice-0-to-25

    Invarably, when a mother has a gut feeling something is wrong, then their is? If you have this feeling then don't doubt it. Has your son had assessments from the EP, OT, SALT etc?

    Very often the reason for denying support, is insufficent information. If the School are as incompetant as they appear, their is a good chance that they have not notified any outside agencies of his difficulties, so their will be little evidence to support those concerns. If your son has not had referrals to assess the above, then you can obtain them privately or ask your GP to refer your son for assessment to the individual specialists in the NHS. Private assessment is costly,but very quick (And, their is no hidden adgenda, so the reports are solely in the childs interests and not influenced by the LA's budget for children with SEN.) If you have independant evidence that your child has specific difficulties, then the NHS will look into this with follow up (Short) assessments themselves. Gradually, a more balanced picture will be formed.

    Do pursue the EHP and ask IPSEA for assistance with this.

    Sadly, your story is not unique. The problem however, is that as parents we believe in the process. As described in this short video, all too often parents have to fight for support for their children.

    www.facebook.com/.../

    I'm assuming that your son is in Secondary now. If your son does not receive the correct support and the school don't treat him with the dignity and respect he deserves, you may need to reconcider his secondary placement for a School more supportive of his needs.

    I wish you every success. Do ask If I can be of more assistance.

    Coogy xx

Reply

  • Hello K2ako,

      Can I just say, I think this is disgracful!

    Firstly, I think you should file a formal complaint to the School. All Schools have a duty of care to the children in their charge and privicy guidelines surrounding a childs special needs information. To publish on a smartboard; in front on the whole class, your childs special needs, is not only a breach of confidentiality, but has seriously compromised your childs safety and mental health as a result. Ask the School for a copy of their formal complaints proceedure and get assitance to file an official complaint to the governing body immediately.

    Secondly, I believe you need more support, as clearly your concerns are not being taken seriously. Have you contacted IPSEA?

    www.ipsea.org.uk/.../services

    They have a helpline and should be able to give you advice on addtional things you can do, toward getting your son diagnosed and correctly supported.

    Sadly, your story is indicative of many parents with children on the spctrum and his reaction to the poor understanding of SEN by the School, is a clear indication that your sons needs are not being met. You should also read the SEN Code of Practice and familiarize yourself with your rights and that of your sons.

    www.gov.uk/.../send-code-of-practice-0-to-25

    Invarably, when a mother has a gut feeling something is wrong, then their is? If you have this feeling then don't doubt it. Has your son had assessments from the EP, OT, SALT etc?

    Very often the reason for denying support, is insufficent information. If the School are as incompetant as they appear, their is a good chance that they have not notified any outside agencies of his difficulties, so their will be little evidence to support those concerns. If your son has not had referrals to assess the above, then you can obtain them privately or ask your GP to refer your son for assessment to the individual specialists in the NHS. Private assessment is costly,but very quick (And, their is no hidden adgenda, so the reports are solely in the childs interests and not influenced by the LA's budget for children with SEN.) If you have independant evidence that your child has specific difficulties, then the NHS will look into this with follow up (Short) assessments themselves. Gradually, a more balanced picture will be formed.

    Do pursue the EHP and ask IPSEA for assistance with this.

    Sadly, your story is not unique. The problem however, is that as parents we believe in the process. As described in this short video, all too often parents have to fight for support for their children.

    www.facebook.com/.../

    I'm assuming that your son is in Secondary now. If your son does not receive the correct support and the school don't treat him with the dignity and respect he deserves, you may need to reconcider his secondary placement for a School more supportive of his needs.

    I wish you every success. Do ask If I can be of more assistance.

    Coogy xx

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