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Let down by the system - can you help us ??

K2ako

Hi

My son is 12 and in mainstream school.

We are waiting for a formal diagnosis which is being done by the autism pathway ( behind closed doors -  not sure if this is common practice or not) we have been waiting for this for 2.5 years, no one seems to want to help us or point us in the right direction to what we need to get done for him. His behaviour was recoginsed by the primary school SENCO, but it is getting worse. His case goes to panel next month (may 28th)

I am at the end of my tether as may son is acting up at school ( mainly because despite me telling school of his issues they are still causing problems with him), teachers making him anxious by not reading the notes on him,not letting him speak or giving hima a chance to try to speak,  he is now becoming violent at school at objects and people.

The school also decided on friday in one of his lessons to flash up on the smart board a list of the children in teh class with special needs ( my son being one of them ) and what their issue was for all to see.

He is now being called a special needs r£%!$d which that word I hate with a passion...

And school ar wondering why he is hitting back now the kids in the class are picking on him because they disclosed this information to the whole class.

every day when coming home from school I have to calm him down from the anxiety the school ahve caused him because they seem to not know what they are doing. i feel like I am on the phone every day to them or at school everyday.

can any one help me I feel let down by the school, the hospital we have no key person to contact school have told me he doesn't need an EHP ( after reading up on this I think he does)

I just feel lost, alone and drained

please can some one reassure me or help me

thanks

worried, tired, scared mum

Parents
  • Former Member
    Former Member

    K2ako,

    Getting the right support and assistance for someone on the spectrum is difficult and there are many posters on the forum who are really struggling to get everything in place at school and at home. The forum is a place to pose problems so there are often more problems than answers.

    Autism is a complex problem but there is a lot of material (books and websites) that can help you crack the code and help you make the right environment for someone with autism. We are often very sensitive to the social surroundings and to our physical environment. These can often be changed but sometimes the environment is too broken and it is not your responsbility to fix a failing school for example.

    There are also a lot of organisations and people who can really make a difference. Schools can be immensely supportive but other schools can be ignorant and useless. The same goes for GPs, mental health teams, social services etc etc.

    Have you discussed your current problems with your GP? They should be the first people to talk to when you have got to the point where you are at. Do they know the delay and the consequences that your son is going through?

Reply
  • Former Member
    Former Member

    K2ako,

    Getting the right support and assistance for someone on the spectrum is difficult and there are many posters on the forum who are really struggling to get everything in place at school and at home. The forum is a place to pose problems so there are often more problems than answers.

    Autism is a complex problem but there is a lot of material (books and websites) that can help you crack the code and help you make the right environment for someone with autism. We are often very sensitive to the social surroundings and to our physical environment. These can often be changed but sometimes the environment is too broken and it is not your responsbility to fix a failing school for example.

    There are also a lot of organisations and people who can really make a difference. Schools can be immensely supportive but other schools can be ignorant and useless. The same goes for GPs, mental health teams, social services etc etc.

    Have you discussed your current problems with your GP? They should be the first people to talk to when you have got to the point where you are at. Do they know the delay and the consequences that your son is going through?

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