Finally a diagnosis for my daughter @ 18 yrs old

Hi everyone - I've been on the message boards a few times over the years as we were struggling to get a diagnosis and help.

Finally we got some help for my daughters anxiety and referred for an assessment which has come back as a diagnosis of autism (high functioning). 

Its something we've battled with for years trying to get medical professionals to listen to us. It changes nothing in our family unit as we all knew including Amy in the latter few years what exactly the issues and daily challenges were that she faced. A diagnosis simply confirms it.

So please - never give up on going for that diagnosis if that's what you want. It's a struggle at times and I found I had to repeat myself many times to different people, & passed from pillar to post constantly over the years!

Its actually a relief for Amy, she now says she understands so much more, she reads about Aspergers, she talks about the many people she knows who has it at college. I can honestly say it's helped her since knowing.  She hasn't told anyone as yet and still feels awkward to say anything about it for fear of people seeing her differently but I will leave that up to her to decide. 

Im wondering what reactions as a teenager or adult you faced when telling people you or a family member has autism / Aspergers?

Xxx 

Parents
  • Hi - I am new to this site. I a have sat here for the past 2 hours looking at the web and wondering how I can help my son. He is 16 and up until 3 months ago we suspected nothing. Now after a couple of stress episodes over exams I have read lots of information and I am sure he is on the spectrum. I have mentioned nothing to him because I fear he will react badly to me suggesting such a thing. We have taken him to the GP as  he said he was depressed. 

    I have discussed things with various people - some agree with me others say it is part of being a teenager - as a mum I recognise so may traits.... hygiene issues, no pattersn on T shirts, same place for holidays, will not leave his bedroom unlees for school, only the same shower gel etc etc etc. 

    Not sure now if we talk my thoughts over with him or just try modyfying our own behavious and expectations?

Reply
  • Hi - I am new to this site. I a have sat here for the past 2 hours looking at the web and wondering how I can help my son. He is 16 and up until 3 months ago we suspected nothing. Now after a couple of stress episodes over exams I have read lots of information and I am sure he is on the spectrum. I have mentioned nothing to him because I fear he will react badly to me suggesting such a thing. We have taken him to the GP as  he said he was depressed. 

    I have discussed things with various people - some agree with me others say it is part of being a teenager - as a mum I recognise so may traits.... hygiene issues, no pattersn on T shirts, same place for holidays, will not leave his bedroom unlees for school, only the same shower gel etc etc etc. 

    Not sure now if we talk my thoughts over with him or just try modyfying our own behavious and expectations?

Children
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