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Finally a diagnosis for my daughter @ 18 yrs old

Denise63

Hi everyone - I've been on the message boards a few times over the years as we were struggling to get a diagnosis and help.

Finally we got some help for my daughters anxiety and referred for an assessment which has come back as a diagnosis of autism (high functioning). 

Its something we've battled with for years trying to get medical professionals to listen to us. It changes nothing in our family unit as we all knew including Amy in the latter few years what exactly the issues and daily challenges were that she faced. A diagnosis simply confirms it.

So please - never give up on going for that diagnosis if that's what you want. It's a struggle at times and I found I had to repeat myself many times to different people, & passed from pillar to post constantly over the years!

Its actually a relief for Amy, she now says she understands so much more, she reads about Aspergers, she talks about the many people she knows who has it at college. I can honestly say it's helped her since knowing.  She hasn't told anyone as yet and still feels awkward to say anything about it for fear of people seeing her differently but I will leave that up to her to decide. 

Im wondering what reactions as a teenager or adult you faced when telling people you or a family member has autism / Aspergers?

Xxx 

Parents

  • To answer your question at the end

    When ive mentioned it to people, ive had comments along the lines of "whatever" or "thats just an excuse".

    The other issue has been people not knowing what it is, googleing it, and finding a youtube video of someone with severe autism. Trying to explain to them that its a spectrum condition, and just because im not like that person, doesnt mean i dont have it tends to fall on death ears.

    Although not officially diagnosed, aspergers was mentioned as a possibility as a child. Im now awaiting an assessment as an adult. Im certain ill get diagnosed as being on the spectrum, even if its at the higher end of it. 

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  • To answer your question at the end

    When ive mentioned it to people, ive had comments along the lines of "whatever" or "thats just an excuse".

    The other issue has been people not knowing what it is, googleing it, and finding a youtube video of someone with severe autism. Trying to explain to them that its a spectrum condition, and just because im not like that person, doesnt mean i dont have it tends to fall on death ears.

    Although not officially diagnosed, aspergers was mentioned as a possibility as a child. Im now awaiting an assessment as an adult. Im certain ill get diagnosed as being on the spectrum, even if its at the higher end of it. 

Children
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