School says to go via GP, GP says to go via school...

Hi all,

We're pretty certain our 6yr old son has Aperger's. His teacher agrees and says it's best to go through the GP for a diagnosis, but the GP has now told us to go via the school! What's the normal/best process? We're in Bristol if that's relevant.

Thanks

Parents
  • Hi,

      If, as it seems, that you are being pushed from pillar to post, I strongly advise you go straight to the LA and request a statutory assessment of your childs needs.

    This has to be done formally and IPSEA have sample letters to help you with this. The reason I suggest this, is that it can take years to get assessed and in the meantime, valuable intervention is lost.

    www.ipsea.org.uk/.../model-letter-1

    If you have a suspision and the situation is obvious to others it doesn't really matter which setting it's witnessed in. Many children are model pupils at School and a nightmare at home.

    Getting the process started in this way should trigger requests to the School from the LA about your childs progress and difficulties. The School are duty bound to comply. In the meantime, I would definately ask another GP at your practice if you are being fobbed off. Reluctance in this is often for financial reasons, but that isn't in your childs best interest. Their is a care pathway through the NHS, you should be aware of. Look it up and remind the GP if he refuses again.

    Does your child have any other difficulties? Words, Balance, fine gross motor Skills?

    If the LA refuse to assess (And some do as a matter of course.) you will need to go to mediation. However, if by then, you have evidence to show significant difficulty, then it's hard for the LA to put up a resonable case for delay in assessment.

    I was niave to it all and diddn't get a statement for my son until the second year of secondary School. By then any intivention was more or less lost on him. He's suffered terribly as a a result and as a young adult cannot read, write or manage much everyday living without considerable support.

    The key here is your childs needs. You are not being heard. If you have a gut reaction that something is wrong, the chances are you should listen to it. Some may try to fob you off with comments like, 'lets see how things go.' If you are not happy with that, then make it known. I didn't have the assertiveness to argue and I deeply regret not being firmer and demanding what was right for my son.

    Stay firm, insist and do contact IPSEA for advice, as they are the experts for the new system rules also.

    Good Luck

    Coogy

     

Reply
  • Hi,

      If, as it seems, that you are being pushed from pillar to post, I strongly advise you go straight to the LA and request a statutory assessment of your childs needs.

    This has to be done formally and IPSEA have sample letters to help you with this. The reason I suggest this, is that it can take years to get assessed and in the meantime, valuable intervention is lost.

    www.ipsea.org.uk/.../model-letter-1

    If you have a suspision and the situation is obvious to others it doesn't really matter which setting it's witnessed in. Many children are model pupils at School and a nightmare at home.

    Getting the process started in this way should trigger requests to the School from the LA about your childs progress and difficulties. The School are duty bound to comply. In the meantime, I would definately ask another GP at your practice if you are being fobbed off. Reluctance in this is often for financial reasons, but that isn't in your childs best interest. Their is a care pathway through the NHS, you should be aware of. Look it up and remind the GP if he refuses again.

    Does your child have any other difficulties? Words, Balance, fine gross motor Skills?

    If the LA refuse to assess (And some do as a matter of course.) you will need to go to mediation. However, if by then, you have evidence to show significant difficulty, then it's hard for the LA to put up a resonable case for delay in assessment.

    I was niave to it all and diddn't get a statement for my son until the second year of secondary School. By then any intivention was more or less lost on him. He's suffered terribly as a a result and as a young adult cannot read, write or manage much everyday living without considerable support.

    The key here is your childs needs. You are not being heard. If you have a gut reaction that something is wrong, the chances are you should listen to it. Some may try to fob you off with comments like, 'lets see how things go.' If you are not happy with that, then make it known. I didn't have the assertiveness to argue and I deeply regret not being firmer and demanding what was right for my son.

    Stay firm, insist and do contact IPSEA for advice, as they are the experts for the new system rules also.

    Good Luck

    Coogy

     

Children
No Data