ASD & Bowel problems NHS

My son is 10 and has been diagnosed with ASD and motor/vocal tics. He has been suffering from bowel issues for about 3/4 years but only recently did I realise there is a link between ASD and the gut so his psychologist has only been focusing on the ASD and we have been seeing a paediatrician about is stomach. He suffers from chronic loose stools and can spend hours on the loo with an upset tummy. We are currently under the hospital but I'm getting frustrated that the consultants seem to dismiss the issue as trivial. We last had an app in Feb and the next one isn't until May! Has anyone else had issues with the NHS taking the bowel issues seriously? I'm definitely going to mention the ASD next time we go. I'm starting to lose faith in the NHS as it's been three years since I first raised it with my Dr and they have only carried out a handful of minor tests in all that time. They seem to think that because he's growing and putting on weight he's fine 

Parents
  • Just spotted this link about probiotics and autism/GI issues - from a science journal. The mainstream are starting to catch up, but slowly!

    www.ncbi.nlm.nih.gov/.../PMC3205659

    If anyone is interested there is a research project run by Kings College London to map the gut microbiome. It is about £70 to participate and you get a printout of the types of bacteria in your sample and the proportions in which they are found. They don't give medical advice but the data may be useful to give to a dietician or nutritional therapist.
    http://www.britishgut.org

Reply
  • Just spotted this link about probiotics and autism/GI issues - from a science journal. The mainstream are starting to catch up, but slowly!

    www.ncbi.nlm.nih.gov/.../PMC3205659

    If anyone is interested there is a research project run by Kings College London to map the gut microbiome. It is about £70 to participate and you get a printout of the types of bacteria in your sample and the proportions in which they are found. They don't give medical advice but the data may be useful to give to a dietician or nutritional therapist.
    http://www.britishgut.org

Children
  • 3 years  later ~~~~~~~~~

    if you want some probiotic for GI and autism. The science made great progress. The most advanced probiotic I know about is this one: 

    https://www.anzctr.org.au/Trial/Registration/TrialReview.aspx?id=370984

    The clinical trial was done on Autistic kids (7 to 15 years old, vs placebo) with a probiotic called PS128. 

    Clinical trial is done with good results, but it seems report was submitted very late due to some "conflicts" between the authors.
    I am connected with them throught my lab. I am very excited about getting the report published.

    If anyone is interested, I can keep you updated.