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DON'T KNOW WHERE TO TURN AND SCARED !!

vickimacca

Hi , over the past 2 years we have been through a very hard time with Social Services . Since both my children were very young we have had issues behavioural , educational , self harm, foodCry and social. The children were being assessed for A.S.D when Social Services got involved falsely accusing us of Fabricated Induced Illness and as I have Depression also accusing me of having Munchausen's Syndrome . We are now fully finished with Social Services as the social worker was found to be incompetent and our doctor , who was the Safeguarding Officer , wrote a letter stating that we hadn't made anything up .

The assessment concluded with both children having A.S.D. traits but not enough for a diagnosis. The issues with the children are getting worse and they are struggling with life ( our son mainly but sometimes our daughter ) and the problem is we don't know where to turn ,I trust our doctor but after all that has happened my husband and I are scared as we don't want Social Services involved again . What can we do , where can we go I only want a diagnosis so that we can get the help and support that our childen need . Our family is broken and we don't know how to fix it , I can't even talk to the school because of the same reason .
Please can someone give us some advice , I was going to phone the Autism Helpline but i'm scared of doing that too.i just wish that someone would believe us and help

Parents

  • Hi Mhairi

    I noticed in your last post that you mentioned his Uncle run a Computer shop.

    Could he talk to your Son about the Surge protecter and maybe show him on the Tv that its ok and won't damage anything? Perhaps his uncle could advise on a back up battery system instead of a Generator, Laptops have batteries in them that would allow for it to carry on a few hours after any potential power cut.

    When is your Son most happy? What things does he enjoy most? Does he largely prefer to be on his own? 

    I'll try not to go on but i left School at Yr 9 not able to cope, as a result have no Gcse's. I've been working solidly the last 10 years until now where stressgot to a point where i was unable to leave my room and where every little noise i heard made me jump 'Ithought this isn't normal'. My Mam mentioned something to me that struck a cord and since then have been to the my Gp and trying to explain how i felt he asked me a few questions  and suggested i may have ASD. Since then i have done a lot of research and i'm waiting for a referal next month, it explained so much, my previous jobs where i was so angry at other staff atthere poor work ethics and efficiant systems and proceedures that i'd developed and how furious i was if the wernt followed or if i was questioned.

    The point i'm trying to make is i have only just realised that something is wrong or atleast accepted it at 29 i've been ignorant and been no doubt difficult for my Mam and Sister.

    Your Son may not be able to tell you how he feels 'I know i wouldn't at that age i just wanted to be on my own with my Lego and Mechano'. 

    What seems to make him happy? Try and increase it in a controlled and organised mannor.

    What make him Sad and Anxious try and decrease this.

    Try and involve him in organising routines, try to find new interests in adition to the PC, you mentioned he likes Drama at School could classed be an option? If he is able to reseach and prepare before he would go, get himself a system in his mind? YouTube offers any type of reviews' ways/systems and advice.

    Keep us updated and hope that atleast some of this may help.

    Kind reguards Steven..

Reply

  • Hi Mhairi

    I noticed in your last post that you mentioned his Uncle run a Computer shop.

    Could he talk to your Son about the Surge protecter and maybe show him on the Tv that its ok and won't damage anything? Perhaps his uncle could advise on a back up battery system instead of a Generator, Laptops have batteries in them that would allow for it to carry on a few hours after any potential power cut.

    When is your Son most happy? What things does he enjoy most? Does he largely prefer to be on his own? 

    I'll try not to go on but i left School at Yr 9 not able to cope, as a result have no Gcse's. I've been working solidly the last 10 years until now where stressgot to a point where i was unable to leave my room and where every little noise i heard made me jump 'Ithought this isn't normal'. My Mam mentioned something to me that struck a cord and since then have been to the my Gp and trying to explain how i felt he asked me a few questions  and suggested i may have ASD. Since then i have done a lot of research and i'm waiting for a referal next month, it explained so much, my previous jobs where i was so angry at other staff atthere poor work ethics and efficiant systems and proceedures that i'd developed and how furious i was if the wernt followed or if i was questioned.

    The point i'm trying to make is i have only just realised that something is wrong or atleast accepted it at 29 i've been ignorant and been no doubt difficult for my Mam and Sister.

    Your Son may not be able to tell you how he feels 'I know i wouldn't at that age i just wanted to be on my own with my Lego and Mechano'. 

    What seems to make him happy? Try and increase it in a controlled and organised mannor.

    What make him Sad and Anxious try and decrease this.

    Try and involve him in organising routines, try to find new interests in adition to the PC, you mentioned he likes Drama at School could classed be an option? If he is able to reseach and prepare before he would go, get himself a system in his mind? YouTube offers any type of reviews' ways/systems and advice.

    Keep us updated and hope that atleast some of this may help.

    Kind reguards Steven..

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