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CAMHS refusing to see my son

Di H

Hi. I'm new to all this and feel so overwhelmed by everything thats been happening to my family.

First a little history. I have a son whos 16 in June, a daughter 11 in Aug and another daughter whos just turned 8.

My son has lived with his dad most of his life up until September of last year, he moved back in with me. He was having problems at home and school so we all agreed a new start for him would be better. I used to have my son every other weekend and holidays.

Well he moved in, my ekder daughter gave up her room so he could have his own and we sorted him out with furniture etc. All started to go fine but certain things started jumping out at me, first I just put it down to my son just being him, hes always done things his way.

He has medical problems and 3 weeks after moving in he got diagnosed with lactose intolerent. He was diagnosed with HSP diease 6 years ago and both of these are being dealt with.

Now I'm going to jump to now. 4 weeks ago I became concerned with variuos things my son was doing and no matter how many times I'd tell him he would completely ignore me so I took it as him being a little sod but after sitting down with my Gp and going through the list I had wrote out she said hes showing traits of Aspergers/Austism!! I was shocked as it has never crossed my mind. Hes doing well in school. predicted c's and above but my GP said its such a broad spectrum some children can go right through school and nothing is noticed until they leave.

My Gp said she was going to refer him to CAMHS. i got a letter asking me to call to make the appointment which I did, but then monday I get a letter from the hospital saying the community peadtriciton has reviewed the referal and he doesn't meet the criteria???? My GP is away until next week so I'm now stuck in limbo until I can speak to her. Every day is a struggle with my son. we have good days but as we are nearing the end of his schooling hes becoming more anxious and tring to change things.

Does anyone know what happens next as surley my GP can't just leave him and us to just get on with it. I will start another comment with his triaits.

Parents

  • Hi DiH

    I am hoping that our own story might help you. We are raising our teenage grandson who has high functioning autism with very challenging behaviours in the home although he is doing well at his additional needs school. A couple of years ago CAMHS in our county lost their remit to look after children with ASD. Our grandson had been seeing a psychologist there for a little over a year. Nothing was put in its place to provide cover for these children and all the parents received a letter with a couple of weeks notice that we were, basically being dumped. My argument was that our grandson was behaving in the way he does because of anxiety which in children with ASD doesn't always show in obvious ways due to complex communication difficulties. The mechanism for a child to be seen for an assessment of their anxiety issues is through CAMHS so I insisted that I wanted my child to be referred. 18 months down the line we are back at CAMHS and have a psychiatrist supporting our grandson and ourselves because so many autistic behaviours are anxiety led. We are seeing true benefits from the support we receive.

Reply

  • Hi DiH

    I am hoping that our own story might help you. We are raising our teenage grandson who has high functioning autism with very challenging behaviours in the home although he is doing well at his additional needs school. A couple of years ago CAMHS in our county lost their remit to look after children with ASD. Our grandson had been seeing a psychologist there for a little over a year. Nothing was put in its place to provide cover for these children and all the parents received a letter with a couple of weeks notice that we were, basically being dumped. My argument was that our grandson was behaving in the way he does because of anxiety which in children with ASD doesn't always show in obvious ways due to complex communication difficulties. The mechanism for a child to be seen for an assessment of their anxiety issues is through CAMHS so I insisted that I wanted my child to be referred. 18 months down the line we are back at CAMHS and have a psychiatrist supporting our grandson and ourselves because so many autistic behaviours are anxiety led. We are seeing true benefits from the support we receive.

Children
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