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CAMHS refusing to see my son

Di H

Hi. I'm new to all this and feel so overwhelmed by everything thats been happening to my family.

First a little history. I have a son whos 16 in June, a daughter 11 in Aug and another daughter whos just turned 8.

My son has lived with his dad most of his life up until September of last year, he moved back in with me. He was having problems at home and school so we all agreed a new start for him would be better. I used to have my son every other weekend and holidays.

Well he moved in, my ekder daughter gave up her room so he could have his own and we sorted him out with furniture etc. All started to go fine but certain things started jumping out at me, first I just put it down to my son just being him, hes always done things his way.

He has medical problems and 3 weeks after moving in he got diagnosed with lactose intolerent. He was diagnosed with HSP diease 6 years ago and both of these are being dealt with.

Now I'm going to jump to now. 4 weeks ago I became concerned with variuos things my son was doing and no matter how many times I'd tell him he would completely ignore me so I took it as him being a little sod but after sitting down with my Gp and going through the list I had wrote out she said hes showing traits of Aspergers/Austism!! I was shocked as it has never crossed my mind. Hes doing well in school. predicted c's and above but my GP said its such a broad spectrum some children can go right through school and nothing is noticed until they leave.

My Gp said she was going to refer him to CAMHS. i got a letter asking me to call to make the appointment which I did, but then monday I get a letter from the hospital saying the community peadtriciton has reviewed the referal and he doesn't meet the criteria???? My GP is away until next week so I'm now stuck in limbo until I can speak to her. Every day is a struggle with my son. we have good days but as we are nearing the end of his schooling hes becoming more anxious and tring to change things.

Does anyone know what happens next as surley my GP can't just leave him and us to just get on with it. I will start another comment with his triaits.

Parents

  • My son has to have everything hidden away in his room, all shelves must be empty and he then uses towels even scrap wallpaper to cover his units.

    He has no sense of danger, leaves gas on, he has to be supervised if he wants to cook, he gets muddled up when cooking, will have everything on high thinking it will cook quicker. Leaves plugs in and turned on, even when we continually tell him to turn it off. Found an electric blanket in his room turned on and it had been like that for days!!!

    He makes himself ill, if his HSP flares up he will self harm to make more liasions on his arms, If GP prescribes meds he will hide tablets so we are none the wiser and will say hes still unwell so needs to go back to the GP (he has a huge fasination with GP) Eats foods which will make him ill (lactose) Its all an attention thing. If I'm talking to my girls he will but in and want the converstation moved to him. He stole his sisters birthday chocs and ate them all. He has no empathy whats so ever, His dad and grandad both have major illnesses and hes never bothered about them.

    Just recently I've had to confiscate all gadgets as he was being unsafe on the internet, chatting to lads and exchanging photos via snap chat (my son says hes gay, not a problem with that but I do have a problem with him sending explicit photos so have safe guarded him and stopped all his ways of communicating)

    He lives in a fantasy land, hes almost 16 and likes to play schools or pubs, if his sister don't join in he will get very angry with them (they find it childish)

    He steals money - doesn't spend it just hourds it, steals marker pens from school and collects them. I have to return them once a month as soon as i find his new hiding place.

    He has no friends apart from 2 girls at school, but he doesn't see anyone outside of school. spends his time in his room or with me.

    He won't go on any public transport unless an adult he knows accompany him and even then its a struggle, he either wants to go in the car or get a taxi. Won't even walk to our local shop on his own. Costs me a bomb every week as i have to drive him to school as he won't catch the bus.

    Hes a complusive washer, he showers every evening at 8.30pm and he goes through a whole bottle of shampoo and body wash a week, we tried portioning it out for him but he started using everyone elses, said he doesn't feel clean using small amounts.

    His obsession is car badges and deal or no deal!!

    Theres so much more but I'm sure you need a cuppa!!

    Please what can i do with regards to getting a diagnosis.

Reply

  • My son has to have everything hidden away in his room, all shelves must be empty and he then uses towels even scrap wallpaper to cover his units.

    He has no sense of danger, leaves gas on, he has to be supervised if he wants to cook, he gets muddled up when cooking, will have everything on high thinking it will cook quicker. Leaves plugs in and turned on, even when we continually tell him to turn it off. Found an electric blanket in his room turned on and it had been like that for days!!!

    He makes himself ill, if his HSP flares up he will self harm to make more liasions on his arms, If GP prescribes meds he will hide tablets so we are none the wiser and will say hes still unwell so needs to go back to the GP (he has a huge fasination with GP) Eats foods which will make him ill (lactose) Its all an attention thing. If I'm talking to my girls he will but in and want the converstation moved to him. He stole his sisters birthday chocs and ate them all. He has no empathy whats so ever, His dad and grandad both have major illnesses and hes never bothered about them.

    Just recently I've had to confiscate all gadgets as he was being unsafe on the internet, chatting to lads and exchanging photos via snap chat (my son says hes gay, not a problem with that but I do have a problem with him sending explicit photos so have safe guarded him and stopped all his ways of communicating)

    He lives in a fantasy land, hes almost 16 and likes to play schools or pubs, if his sister don't join in he will get very angry with them (they find it childish)

    He steals money - doesn't spend it just hourds it, steals marker pens from school and collects them. I have to return them once a month as soon as i find his new hiding place.

    He has no friends apart from 2 girls at school, but he doesn't see anyone outside of school. spends his time in his room or with me.

    He won't go on any public transport unless an adult he knows accompany him and even then its a struggle, he either wants to go in the car or get a taxi. Won't even walk to our local shop on his own. Costs me a bomb every week as i have to drive him to school as he won't catch the bus.

    Hes a complusive washer, he showers every evening at 8.30pm and he goes through a whole bottle of shampoo and body wash a week, we tried portioning it out for him but he started using everyone elses, said he doesn't feel clean using small amounts.

    His obsession is car badges and deal or no deal!!

    Theres so much more but I'm sure you need a cuppa!!

    Please what can i do with regards to getting a diagnosis.

Children
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