Had first interview by adult autism team today

Hi all.

I had my first interview today and it has left me very agitated. I was told I would either be asked back for a follow up or told I dont have it, and I have been asked back but he said it was very "mixed" from what they see. This is because  it was all based on info from my mum about how I was when I was little. This was 30 years ago and my mum was not sure of alot of the questions. I have most of the symptoms and have had my whole life as far as I remember, but in the interview they kept saying they are not sure there is enough evidence from when I was little. I did alot of hand flapping(stimming) when little and was quite eccentric this was drawn to parents attention in early primary school(age 5ish). I still do that to this day at 33. I am concerned he seems not particularily interested in any symtoms I have now but insists on me remembering things from childhood. As far as I am aware I have been how I am all my life. I hope that my mums info is not all this is based on or I am concerned I will be dismissed out of hand at the next stage. Since learning that aspergers is probably the explanation for most of my problems it has helped greatly with understanding my self and I am terrified of the fallout of being told I am wrong. I have terrible social anxiety and time management isssues as well as sensory sensitivity and relationship problems.  Has anyone else encountered this issue with the distant past being the main focus and point of contention? Hope to hear from you guys. I can form friendships but bore people to death with my various obsessions and avoid busy social settings a lot which makes maintaining friendships awekward. I can act "normal" sometimes but it takes a lot out of me and is very stressfull making small talk and things. 

Thanks

Parents
  • Hah! Interesting you should mention being picked for teams. I hadn't though about that until you mentioned it. This was always painful as I was always among the last to be wanted.  I wasn't friendless but I usually had one good friend at a time. Other kids I knew weren't friends, more acquaintances.

    I remember thinking, when I was about 9, that they ought to give everyone a book of rules at school.  When I found out that there was a school rule book I sought it out and was frankly appalled when I read it. They ahd left almost everything out as far as I could see. There were obviously numerous rules for what to say if somebody says such and such a thing, whether you need to reply or not - all sorts of rules about social behaviours that I had clearly infringed without knowing until it was too late. But nodody ever explained why whatever I'd done wrong was wrong, it was as if I was somehow simply expected to already know.  It baffed me that everyone else did seem to already know. If I asked how I was supposed to know, but nobody even understand the question. I would be shouted at and punished for insolence.  I hated school with a passion, increasingly so from the age of about 10 until I left at 16.

    I was always collecting things - stones, fossils, coins, matchboxes, anything foreign such as foreign sweet wrappers, *** packets, tobacco tins, toy cars and lorries (especially lorries), bottle tops, anything old and interesting. I knew the names of all the American cars and would say them as they drove by, when we lived in New York, so that would have been before I was 3. I soon learned all the British ones when we came here.

    I still don't understand why she dismissed the school reports though. I'd have thought they give quite a picture of attention deficit if nothing else.

Reply
  • Hah! Interesting you should mention being picked for teams. I hadn't though about that until you mentioned it. This was always painful as I was always among the last to be wanted.  I wasn't friendless but I usually had one good friend at a time. Other kids I knew weren't friends, more acquaintances.

    I remember thinking, when I was about 9, that they ought to give everyone a book of rules at school.  When I found out that there was a school rule book I sought it out and was frankly appalled when I read it. They ahd left almost everything out as far as I could see. There were obviously numerous rules for what to say if somebody says such and such a thing, whether you need to reply or not - all sorts of rules about social behaviours that I had clearly infringed without knowing until it was too late. But nodody ever explained why whatever I'd done wrong was wrong, it was as if I was somehow simply expected to already know.  It baffed me that everyone else did seem to already know. If I asked how I was supposed to know, but nobody even understand the question. I would be shouted at and punished for insolence.  I hated school with a passion, increasingly so from the age of about 10 until I left at 16.

    I was always collecting things - stones, fossils, coins, matchboxes, anything foreign such as foreign sweet wrappers, *** packets, tobacco tins, toy cars and lorries (especially lorries), bottle tops, anything old and interesting. I knew the names of all the American cars and would say them as they drove by, when we lived in New York, so that would have been before I was 3. I soon learned all the British ones when we came here.

    I still don't understand why she dismissed the school reports though. I'd have thought they give quite a picture of attention deficit if nothing else.

Children
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