Had first interview by adult autism team today

Hi all.

I had my first interview today and it has left me very agitated. I was told I would either be asked back for a follow up or told I dont have it, and I have been asked back but he said it was very "mixed" from what they see. This is because  it was all based on info from my mum about how I was when I was little. This was 30 years ago and my mum was not sure of alot of the questions. I have most of the symptoms and have had my whole life as far as I remember, but in the interview they kept saying they are not sure there is enough evidence from when I was little. I did alot of hand flapping(stimming) when little and was quite eccentric this was drawn to parents attention in early primary school(age 5ish). I still do that to this day at 33. I am concerned he seems not particularily interested in any symtoms I have now but insists on me remembering things from childhood. As far as I am aware I have been how I am all my life. I hope that my mums info is not all this is based on or I am concerned I will be dismissed out of hand at the next stage. Since learning that aspergers is probably the explanation for most of my problems it has helped greatly with understanding my self and I am terrified of the fallout of being told I am wrong. I have terrible social anxiety and time management isssues as well as sensory sensitivity and relationship problems.  Has anyone else encountered this issue with the distant past being the main focus and point of contention? Hope to hear from you guys. I can form friendships but bore people to death with my various obsessions and avoid busy social settings a lot which makes maintaining friendships awekward. I can act "normal" sometimes but it takes a lot out of me and is very stressfull making small talk and things. 

Thanks

Parents
  • What people have said in the above few replies is good to know, thanks everyone.  It is interesting that the general impression is that third party evidence of childhood behaviour is not any kind of strict requirement. That is not the impression given by the psychologist I saw.  Racking my brains to remember it more clearly, I think she might have said that she couldn't make a FULL diagnosis without such evidence. I guess that could mean a vague diagnosis such as 'probable ASD' or similar?

    What really baffles me is her dismissal of my school reports. I've looked through them again, and to me, they couldn't give a clearer picture of a child who just doesn't 'get' the point of school - which is exactly how it was for me. If something caught my interest, I'd show interest, keenly. But unfortunately for those who knew what was best for me, that was more often something going on out of the window, or in my own head, than what they were trying to teach me.

    I have the chance to write her a letter which she has said she will read before we meet again on 14th Jan. So that seems promising, and I'll explain all my misgivings in that.  I'll have to be honest and tell her that I think she ought to make allowances for the fact that I've got through nearly 56 years of life so far, and on the way I have taught myself a lot of coping strategies and developed quite a skill at acting as I've learned is likelyy to be how others expect me to act.  I was very different as a child. And as others on here have said, even my mother is unlikely to be more than vaguely aware of how things were for me back then, as I tended to be secretive, and rarely spoke about my problems.

    Anyway, thanks to all for your responses, they have been very helpful.

Reply
  • What people have said in the above few replies is good to know, thanks everyone.  It is interesting that the general impression is that third party evidence of childhood behaviour is not any kind of strict requirement. That is not the impression given by the psychologist I saw.  Racking my brains to remember it more clearly, I think she might have said that she couldn't make a FULL diagnosis without such evidence. I guess that could mean a vague diagnosis such as 'probable ASD' or similar?

    What really baffles me is her dismissal of my school reports. I've looked through them again, and to me, they couldn't give a clearer picture of a child who just doesn't 'get' the point of school - which is exactly how it was for me. If something caught my interest, I'd show interest, keenly. But unfortunately for those who knew what was best for me, that was more often something going on out of the window, or in my own head, than what they were trying to teach me.

    I have the chance to write her a letter which she has said she will read before we meet again on 14th Jan. So that seems promising, and I'll explain all my misgivings in that.  I'll have to be honest and tell her that I think she ought to make allowances for the fact that I've got through nearly 56 years of life so far, and on the way I have taught myself a lot of coping strategies and developed quite a skill at acting as I've learned is likelyy to be how others expect me to act.  I was very different as a child. And as others on here have said, even my mother is unlikely to be more than vaguely aware of how things were for me back then, as I tended to be secretive, and rarely spoke about my problems.

    Anyway, thanks to all for your responses, they have been very helpful.

Children
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