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Had first interview by adult autism team today

dogdude

Hi all.

I had my first interview today and it has left me very agitated. I was told I would either be asked back for a follow up or told I dont have it, and I have been asked back but he said it was very "mixed" from what they see. This is because  it was all based on info from my mum about how I was when I was little. This was 30 years ago and my mum was not sure of alot of the questions. I have most of the symptoms and have had my whole life as far as I remember, but in the interview they kept saying they are not sure there is enough evidence from when I was little. I did alot of hand flapping(stimming) when little and was quite eccentric this was drawn to parents attention in early primary school(age 5ish). I still do that to this day at 33. I am concerned he seems not particularily interested in any symtoms I have now but insists on me remembering things from childhood. As far as I am aware I have been how I am all my life. I hope that my mums info is not all this is based on or I am concerned I will be dismissed out of hand at the next stage. Since learning that aspergers is probably the explanation for most of my problems it has helped greatly with understanding my self and I am terrified of the fallout of being told I am wrong. I have terrible social anxiety and time management isssues as well as sensory sensitivity and relationship problems.  Has anyone else encountered this issue with the distant past being the main focus and point of contention? Hope to hear from you guys. I can form friendships but bore people to death with my various obsessions and avoid busy social settings a lot which makes maintaining friendships awekward. I can act "normal" sometimes but it takes a lot out of me and is very stressfull making small talk and things. 

Thanks

Parents

  • Hi dogdude. This subject has arisen before, so I'll try to repeat what we said then.

    This business of parental information is a red herring. There are many people who can't or won't supply that information for a variety of reasons, and it isn't necessary.There are people whose parents are dead, there are people who are estranged from their parents and don't want them involved.

    As an adult, you should be assessed in your own right using available information, so whilst parental information can help to inform the process, it is by no means a requirement, and anyone claiming otherwise needs to be told as much - it's an excuse (and a poor one) that others have been given.

    The truth is that parents often don't see or remember the little things that are telling. My own Mum, when she was alive, just thought that I was a bit odd sometimes but put my eccentricity down to my 'intelligence', she had absolutely no idea of the things I suffered as a child. In a way, her disinformation on my childhood could have been very damaging to my assessment - like most parents everywhere, she would not have admitted that anything was wrong with her child. We still have interaction now on here with parents who cannot accept that their close relationship with their child blinds them to the truth - they see what they prefer to see, rather than the reality.

    The most important information they need can only come from you, and that can only really be explored by a professional with specific ASD training, the subleties are beyond 'general' practitioners. Any extra information from others may be helpful but isn't required or strictly necessary.

Reply

  • Hi dogdude. This subject has arisen before, so I'll try to repeat what we said then.

    This business of parental information is a red herring. There are many people who can't or won't supply that information for a variety of reasons, and it isn't necessary.There are people whose parents are dead, there are people who are estranged from their parents and don't want them involved.

    As an adult, you should be assessed in your own right using available information, so whilst parental information can help to inform the process, it is by no means a requirement, and anyone claiming otherwise needs to be told as much - it's an excuse (and a poor one) that others have been given.

    The truth is that parents often don't see or remember the little things that are telling. My own Mum, when she was alive, just thought that I was a bit odd sometimes but put my eccentricity down to my 'intelligence', she had absolutely no idea of the things I suffered as a child. In a way, her disinformation on my childhood could have been very damaging to my assessment - like most parents everywhere, she would not have admitted that anything was wrong with her child. We still have interaction now on here with parents who cannot accept that their close relationship with their child blinds them to the truth - they see what they prefer to see, rather than the reality.

    The most important information they need can only come from you, and that can only really be explored by a professional with specific ASD training, the subleties are beyond 'general' practitioners. Any extra information from others may be helpful but isn't required or strictly necessary.

Children
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