Had first interview by adult autism team today

Hi all.

I had my first interview today and it has left me very agitated. I was told I would either be asked back for a follow up or told I dont have it, and I have been asked back but he said it was very "mixed" from what they see. This is because  it was all based on info from my mum about how I was when I was little. This was 30 years ago and my mum was not sure of alot of the questions. I have most of the symptoms and have had my whole life as far as I remember, but in the interview they kept saying they are not sure there is enough evidence from when I was little. I did alot of hand flapping(stimming) when little and was quite eccentric this was drawn to parents attention in early primary school(age 5ish). I still do that to this day at 33. I am concerned he seems not particularily interested in any symtoms I have now but insists on me remembering things from childhood. As far as I am aware I have been how I am all my life. I hope that my mums info is not all this is based on or I am concerned I will be dismissed out of hand at the next stage. Since learning that aspergers is probably the explanation for most of my problems it has helped greatly with understanding my self and I am terrified of the fallout of being told I am wrong. I have terrible social anxiety and time management isssues as well as sensory sensitivity and relationship problems.  Has anyone else encountered this issue with the distant past being the main focus and point of contention? Hope to hear from you guys. I can form friendships but bore people to death with my various obsessions and avoid busy social settings a lot which makes maintaining friendships awekward. I can act "normal" sometimes but it takes a lot out of me and is very stressfull making small talk and things. 

Thanks

Parents
  • yes they are rather insistent on talking to parents, youd have to be able to give very very good reaosn to why they cant talk to them. As for the questionnaires i mentioned, there were alot of these handed to me on the first appointment with a proper autism specialist(rather than the normal psychologist), there was one about sensory issues, there was stuff about childhood, there was stuff about coping in day to day life, your personality, etc etc and compare with childhood(every point ended pretty much with a quetsion like "has it always been like this" or something like that). But for that youd have to get the psychologist to refer u to the porper specialist. (in my case too, the psychologist just asked loads of questions, did some funny tests waving his hands about etc, perhaps to see if i pick up on non verbal stuff, idk, didnt understand anything, but said ok to everything just in case, lol. But in the end he just said im "probably" on the spectrum, but he doesnt know alot about it nor is he a specialist in the field, then referred me to someone specialised in autism). The questionaires i had to take home and fill out, took me days, esecially the one with the more open ended stuff where you actually had to write the answers rather than draw X marks in the boxes. Then next appointment had to take them back So she could check them and discuss it and ask further questions etc(probably helped that i decided to type the open ended one in the computer and sent via email rather than having her try read my handwriting, it tends to be rather unreadable. So that one she had read in advance and gave feedback to well before my actual appointment)

Reply
  • yes they are rather insistent on talking to parents, youd have to be able to give very very good reaosn to why they cant talk to them. As for the questionnaires i mentioned, there were alot of these handed to me on the first appointment with a proper autism specialist(rather than the normal psychologist), there was one about sensory issues, there was stuff about childhood, there was stuff about coping in day to day life, your personality, etc etc and compare with childhood(every point ended pretty much with a quetsion like "has it always been like this" or something like that). But for that youd have to get the psychologist to refer u to the porper specialist. (in my case too, the psychologist just asked loads of questions, did some funny tests waving his hands about etc, perhaps to see if i pick up on non verbal stuff, idk, didnt understand anything, but said ok to everything just in case, lol. But in the end he just said im "probably" on the spectrum, but he doesnt know alot about it nor is he a specialist in the field, then referred me to someone specialised in autism). The questionaires i had to take home and fill out, took me days, esecially the one with the more open ended stuff where you actually had to write the answers rather than draw X marks in the boxes. Then next appointment had to take them back So she could check them and discuss it and ask further questions etc(probably helped that i decided to type the open ended one in the computer and sent via email rather than having her try read my handwriting, it tends to be rather unreadable. So that one she had read in advance and gave feedback to well before my actual appointment)

Children
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