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Had first interview by adult autism team today

dogdude

Hi all.

I had my first interview today and it has left me very agitated. I was told I would either be asked back for a follow up or told I dont have it, and I have been asked back but he said it was very "mixed" from what they see. This is because  it was all based on info from my mum about how I was when I was little. This was 30 years ago and my mum was not sure of alot of the questions. I have most of the symptoms and have had my whole life as far as I remember, but in the interview they kept saying they are not sure there is enough evidence from when I was little. I did alot of hand flapping(stimming) when little and was quite eccentric this was drawn to parents attention in early primary school(age 5ish). I still do that to this day at 33. I am concerned he seems not particularily interested in any symtoms I have now but insists on me remembering things from childhood. As far as I am aware I have been how I am all my life. I hope that my mums info is not all this is based on or I am concerned I will be dismissed out of hand at the next stage. Since learning that aspergers is probably the explanation for most of my problems it has helped greatly with understanding my self and I am terrified of the fallout of being told I am wrong. I have terrible social anxiety and time management isssues as well as sensory sensitivity and relationship problems.  Has anyone else encountered this issue with the distant past being the main focus and point of contention? Hope to hear from you guys. I can form friendships but bore people to death with my various obsessions and avoid busy social settings a lot which makes maintaining friendships awekward. I can act "normal" sometimes but it takes a lot out of me and is very stressfull making small talk and things. 

Thanks

Parents

  • hello. I too think they are a bit slow with all their appointments and stuff and extremely focused on early childhood, although there are options without having to have them to ask the parents. I had requested a diagnosis last year via my gp as thats what seemed to be required everywhere, didnt have my first relevant appointment till december, where i was told i am "probably" on the spectrum, but was told further appointments will be required with more appropriate specialists, as i think the first person i was referred to was probably an ordinary psychriatist or something. Next appointment was sometime in march, and the first follow up a few weeks after, where i got the diagnosis confirmed. They did request whether or not they could talk to my parents about it, but gave up on the idea after i explained my parents barely knew me, including early childhood as me and my sister had ever-changing nannies looking after us for most of the early years(constantly changing as werent able to cope with us apparently), also they long split up and dont even live in the same country, so wont be able to come for a face-to-face appointment, and i dont necessarily want to have to bring up the topic with them anyways. Therefore i just had to fill out the quesionnaires by myself, and that was more than enough apparently as i got the diagnosis before they even read the last lot of them:) So it is possible to do it without parent involvement even if they are still alive. (i am only 25)

    You would think they would be a bit more accommodating considering the amount of stress the whole process creates not to leave it hanging for so long..

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  • hello. I too think they are a bit slow with all their appointments and stuff and extremely focused on early childhood, although there are options without having to have them to ask the parents. I had requested a diagnosis last year via my gp as thats what seemed to be required everywhere, didnt have my first relevant appointment till december, where i was told i am "probably" on the spectrum, but was told further appointments will be required with more appropriate specialists, as i think the first person i was referred to was probably an ordinary psychriatist or something. Next appointment was sometime in march, and the first follow up a few weeks after, where i got the diagnosis confirmed. They did request whether or not they could talk to my parents about it, but gave up on the idea after i explained my parents barely knew me, including early childhood as me and my sister had ever-changing nannies looking after us for most of the early years(constantly changing as werent able to cope with us apparently), also they long split up and dont even live in the same country, so wont be able to come for a face-to-face appointment, and i dont necessarily want to have to bring up the topic with them anyways. Therefore i just had to fill out the quesionnaires by myself, and that was more than enough apparently as i got the diagnosis before they even read the last lot of them:) So it is possible to do it without parent involvement even if they are still alive. (i am only 25)

    You would think they would be a bit more accommodating considering the amount of stress the whole process creates not to leave it hanging for so long..

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