Had first interview by adult autism team today

Hi all.

I had my first interview today and it has left me very agitated. I was told I would either be asked back for a follow up or told I dont have it, and I have been asked back but he said it was very "mixed" from what they see. This is because  it was all based on info from my mum about how I was when I was little. This was 30 years ago and my mum was not sure of alot of the questions. I have most of the symptoms and have had my whole life as far as I remember, but in the interview they kept saying they are not sure there is enough evidence from when I was little. I did alot of hand flapping(stimming) when little and was quite eccentric this was drawn to parents attention in early primary school(age 5ish). I still do that to this day at 33. I am concerned he seems not particularily interested in any symtoms I have now but insists on me remembering things from childhood. As far as I am aware I have been how I am all my life. I hope that my mums info is not all this is based on or I am concerned I will be dismissed out of hand at the next stage. Since learning that aspergers is probably the explanation for most of my problems it has helped greatly with understanding my self and I am terrified of the fallout of being told I am wrong. I have terrible social anxiety and time management isssues as well as sensory sensitivity and relationship problems.  Has anyone else encountered this issue with the distant past being the main focus and point of contention? Hope to hear from you guys. I can form friendships but bore people to death with my various obsessions and avoid busy social settings a lot which makes maintaining friendships awekward. I can act "normal" sometimes but it takes a lot out of me and is very stressfull making small talk and things. 

Thanks

Parents
  • I was diagnosed last year 46 year old and yes my childhood played an important part of the asessments. I was lucky though as had CBT the previous year and self referred me to another lot and it was that psychologist that identified something was really happening. As many adults will probably say, I was definately misunderstood as a child. I had other health issues anyway. At sixth form I was very nearly expelled (was asked to leave) through arguing back with tutors etc. Growing pains were definately that and no wonder if was contending with autism too and it wasn't recognised in girls then.  I really struggled and there was enough evidence and my mother provided more. Looking back it makes sense to me now.  By the way, I refused to read anything between the referal and assessments. I wanted to make sure I was going in totally unread about it. I had no idea what happend at the asssessments. Information had me prepared for mum being at one of the sessions. I had two assessments. Then was invited back for the diagnosis which included a mini assessment from the Psychologist himself.  I spent the last year learning how it affects me and some kind of strategies to put in place and the people around me to understand what is happening. I think I am still learning as well as the people around me are still learning of how to help me when difficulties arise. Sometimes I notice and sometimes I am sure I am not noticing as such. But it is nice as with the right help one isn't being misjudged. It more what people do around us rather than what happens in an NHS appointment. But it helps when we can let people know have autism. It not a lable that ties you down it a lable that frees  Smile

Reply
  • I was diagnosed last year 46 year old and yes my childhood played an important part of the asessments. I was lucky though as had CBT the previous year and self referred me to another lot and it was that psychologist that identified something was really happening. As many adults will probably say, I was definately misunderstood as a child. I had other health issues anyway. At sixth form I was very nearly expelled (was asked to leave) through arguing back with tutors etc. Growing pains were definately that and no wonder if was contending with autism too and it wasn't recognised in girls then.  I really struggled and there was enough evidence and my mother provided more. Looking back it makes sense to me now.  By the way, I refused to read anything between the referal and assessments. I wanted to make sure I was going in totally unread about it. I had no idea what happend at the asssessments. Information had me prepared for mum being at one of the sessions. I had two assessments. Then was invited back for the diagnosis which included a mini assessment from the Psychologist himself.  I spent the last year learning how it affects me and some kind of strategies to put in place and the people around me to understand what is happening. I think I am still learning as well as the people around me are still learning of how to help me when difficulties arise. Sometimes I notice and sometimes I am sure I am not noticing as such. But it is nice as with the right help one isn't being misjudged. It more what people do around us rather than what happens in an NHS appointment. But it helps when we can let people know have autism. It not a lable that ties you down it a lable that frees  Smile

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