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I am getting so blooming frustrated!

mumof4boys772

So we have been to the audiologist he has confirmed my son has hypercussis and will be recieing specail hearing aids to help.

We are going on a socail communication course next week and the week after, my son cannot infer meaning from pictures,people or feeling as well as the rest of the blurb that fits the spectrum!

I have not posted everything as you will all have probably read my countless threads before,however i am getting so dammed frustrated that this can all bbe put down toautistic traits and sensory issues,how can it be possible when we have been living a life of hell for years?

So when they say autistic traits they could possibley be saying theres nothing wrong with him,wheres the help for the sensory issues?

I am getting so peeved,its been a long hard battle and i feel like i need to give up and not pursue what help he will need in the future.

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  • Former Member
    Former Member

    MO4B,

    The health professionals have identified hyperacusis and are dealing with that properly. There is no way that that was due to parenting issues. The Social Communication course is similar. Social Communication is a fundamental problem suffered by people with autistic sprectrum disorders. It is not related to parenting skills - it is just the way we are. All sufferers on this forum have social communication problems and we all need extra help to deal with the rest of the world to avoid getting into fights or becoming a recluse.

    I am happy to recognise that I have autistic traits that exist alongside my non-autistic traits. In some situations I do autistic things and on other occasions no one would notice that I am autistic. I don't mind thinking of myself as having autism because I know that it gives me some specific problems but I know that it doesn't entirely define me and I have managed without the label for most of my life. Looking back I can see that I have always been this way and that I would have benefited from some specific assistance with some issues on various occasions back to primary school.

    I am also a parent of two boys. I wish that I had known about my autism earlier because I would change some of the things I did as a parent. I don't think that my parenting skills were always brilliant. I wasn't a great listner and I also let them negotiate their way into doing things that I should have put a stop to. I think autistic people can make good parents but, like 99% of all parents, I think we can all learn a trick or two to be better parents.With autistic children the job is harder and there are more specific things that you can do as a parent to help him. Some of these things are not obvious and I think you should allow people to help and make suggestions.

    The main message I want to give however is that IT IS NOT YOUR FAULT! people may have made remarks in the past about parenting skills but autism does not come from bad parenting skills, the health professionals are not suggesting this when they send you on a social communication course.

Reply
  • Former Member
    Former Member

    MO4B,

    The health professionals have identified hyperacusis and are dealing with that properly. There is no way that that was due to parenting issues. The Social Communication course is similar. Social Communication is a fundamental problem suffered by people with autistic sprectrum disorders. It is not related to parenting skills - it is just the way we are. All sufferers on this forum have social communication problems and we all need extra help to deal with the rest of the world to avoid getting into fights or becoming a recluse.

    I am happy to recognise that I have autistic traits that exist alongside my non-autistic traits. In some situations I do autistic things and on other occasions no one would notice that I am autistic. I don't mind thinking of myself as having autism because I know that it gives me some specific problems but I know that it doesn't entirely define me and I have managed without the label for most of my life. Looking back I can see that I have always been this way and that I would have benefited from some specific assistance with some issues on various occasions back to primary school.

    I am also a parent of two boys. I wish that I had known about my autism earlier because I would change some of the things I did as a parent. I don't think that my parenting skills were always brilliant. I wasn't a great listner and I also let them negotiate their way into doing things that I should have put a stop to. I think autistic people can make good parents but, like 99% of all parents, I think we can all learn a trick or two to be better parents.With autistic children the job is harder and there are more specific things that you can do as a parent to help him. Some of these things are not obvious and I think you should allow people to help and make suggestions.

    The main message I want to give however is that IT IS NOT YOUR FAULT! people may have made remarks in the past about parenting skills but autism does not come from bad parenting skills, the health professionals are not suggesting this when they send you on a social communication course.

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