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I am getting so blooming frustrated!

mumof4boys772

So we have been to the audiologist he has confirmed my son has hypercussis and will be recieing specail hearing aids to help.

We are going on a socail communication course next week and the week after, my son cannot infer meaning from pictures,people or feeling as well as the rest of the blurb that fits the spectrum!

I have not posted everything as you will all have probably read my countless threads before,however i am getting so dammed frustrated that this can all bbe put down toautistic traits and sensory issues,how can it be possible when we have been living a life of hell for years?

So when they say autistic traits they could possibley be saying theres nothing wrong with him,wheres the help for the sensory issues?

I am getting so peeved,its been a long hard battle and i feel like i need to give up and not pursue what help he will need in the future.

Parents

  • Since posting this I've looked up a number of autism books (including ones on the science behind autism and hypersensitivity) and they don't mention hyperacusis

    I looked it up on the front page search function and got glossary H nothing said. However I tried the research on Autism link (under advanced search) and that came up as link broken (is NAS aware it doesn't link?).

    I tried Autism Data and that came up with 16 academic papers, back to 1995 but a number 2012-2014, but no explanation offered other than to look these up. Hyperacusis wasn't in the article titles.

    If NAS really doesn't know about hyperacusis directly, why are people on the autistic spectrum being treated in this way?

    I am concerned that a treatment for a non-autistic condition has claimed it also cures autism. For that there needs to be proper back up.

Reply

  • Since posting this I've looked up a number of autism books (including ones on the science behind autism and hypersensitivity) and they don't mention hyperacusis

    I looked it up on the front page search function and got glossary H nothing said. However I tried the research on Autism link (under advanced search) and that came up as link broken (is NAS aware it doesn't link?).

    I tried Autism Data and that came up with 16 academic papers, back to 1995 but a number 2012-2014, but no explanation offered other than to look these up. Hyperacusis wasn't in the article titles.

    If NAS really doesn't know about hyperacusis directly, why are people on the autistic spectrum being treated in this way?

    I am concerned that a treatment for a non-autistic condition has claimed it also cures autism. For that there needs to be proper back up.

Children
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