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I am getting so blooming frustrated!

mumof4boys772

So we have been to the audiologist he has confirmed my son has hypercussis and will be recieing specail hearing aids to help.

We are going on a socail communication course next week and the week after, my son cannot infer meaning from pictures,people or feeling as well as the rest of the blurb that fits the spectrum!

I have not posted everything as you will all have probably read my countless threads before,however i am getting so dammed frustrated that this can all bbe put down toautistic traits and sensory issues,how can it be possible when we have been living a life of hell for years?

So when they say autistic traits they could possibley be saying theres nothing wrong with him,wheres the help for the sensory issues?

I am getting so peeved,its been a long hard battle and i feel like i need to give up and not pursue what help he will need in the future.

Parents

  • Do you mean "hyperacusis"?  This is something that puzzles me - it is diagnosed and treated as a condition in its own right, yet is matches something that many people on the autistic spectrum experience.

    It does make me wonder if, for some reason (and there seem to be a few of these around) they are trying to avoid diagnosing autism.

    I looked it up on NHS choices and there is just ONE mention of autism "is particularly common in children with Williams Syndrome, autistic specterum disorder, and tinnitis". So do those of us now diagnosed with autism really have hyperacusis? Here are some quotations from the NHS Choices webpage:

    "An extreme aversion and hypersensitivity to sounds that are generally not an issue to others"

    "As a result people with hyperacusis may avoid noisy situations and become socially isolated"

    "Children with hyperacusis may struggle at school, where background noise can make it difficult for them to concentrate, thereby affecting their achievement".

    It is treated by CBT and a noise generator that works through a hearing aid that gradually acclimatises the sufferer to noise.

    BUT is this appropriate fot patients with autism? As I say autism is only mentioned once.

    I can see why the indistinction arises - hypersensitivity to sound is not in the Triad of Impairments (NAS's bible for understanding autism).

    There is a reason why it is excluded. Hearing sounds other people cannot hear might be confused with schozophrenia. And the triad of impairments was designed as a diagnostic tool to distinguish autism from other conditions, including schizophrenia. Sensitivity to noise (whether hypo or hyper) is usually mentioned as an add on symptom, without adequate explanation...or several pages away, as on the NAS website.

    So (NAS Moderators please pay attention) is the relationship between hyperacusis and autism being overlooked. Are people with autism (or autistic traits) being treated inappropriately by what amounts to aversion therapy?

    I think it is time we knew.

Reply

  • Do you mean "hyperacusis"?  This is something that puzzles me - it is diagnosed and treated as a condition in its own right, yet is matches something that many people on the autistic spectrum experience.

    It does make me wonder if, for some reason (and there seem to be a few of these around) they are trying to avoid diagnosing autism.

    I looked it up on NHS choices and there is just ONE mention of autism "is particularly common in children with Williams Syndrome, autistic specterum disorder, and tinnitis". So do those of us now diagnosed with autism really have hyperacusis? Here are some quotations from the NHS Choices webpage:

    "An extreme aversion and hypersensitivity to sounds that are generally not an issue to others"

    "As a result people with hyperacusis may avoid noisy situations and become socially isolated"

    "Children with hyperacusis may struggle at school, where background noise can make it difficult for them to concentrate, thereby affecting their achievement".

    It is treated by CBT and a noise generator that works through a hearing aid that gradually acclimatises the sufferer to noise.

    BUT is this appropriate fot patients with autism? As I say autism is only mentioned once.

    I can see why the indistinction arises - hypersensitivity to sound is not in the Triad of Impairments (NAS's bible for understanding autism).

    There is a reason why it is excluded. Hearing sounds other people cannot hear might be confused with schozophrenia. And the triad of impairments was designed as a diagnostic tool to distinguish autism from other conditions, including schizophrenia. Sensitivity to noise (whether hypo or hyper) is usually mentioned as an add on symptom, without adequate explanation...or several pages away, as on the NAS website.

    So (NAS Moderators please pay attention) is the relationship between hyperacusis and autism being overlooked. Are people with autism (or autistic traits) being treated inappropriately by what amounts to aversion therapy?

    I think it is time we knew.

Children
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