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GP's not helping with diagnosis - advice please

Kirst7

Hi,

This is regarding my niece who is 5 years old (will be 6 in August). She has not formally been diagnosed with Aspergers condition as the Doctors will not accept her behaviour.

She is not like a normal 5 year old, she is well behaved/quiet/happy to play on her own.

When my sister went to the doctors about her behaviour they put it down to parenting. Having researched into it, aspergers fits her behaviour perfectly.

She is the perfect little girl, so bright for her age. But she just doesn't seem like a happy 5 year old.

Please can someone advise me on how I can get a referral to speak to someone to help diagnose her when the NHS won't help??

Parents

  • You may be aware of the primary care patient surveys assessing GP surgeries. These are asking mainly about waiting times but also the extent to which patients are involved in decisions. There are also some special to disability surveys doing the rounds, such as one on learning disability, assessing how well GPs handle this issue.

    There does seem to be a real problem with GP handling of diagnosis requests despite resolution by professional bodies to improve diagnosis referrals.

    You can approach the Primary Care Trust in your area and ask for advice on getting a diagnosis, and explaining the difficulties, and just the act of doing so might spur some improvement.

Reply

  • You may be aware of the primary care patient surveys assessing GP surgeries. These are asking mainly about waiting times but also the extent to which patients are involved in decisions. There are also some special to disability surveys doing the rounds, such as one on learning disability, assessing how well GPs handle this issue.

    There does seem to be a real problem with GP handling of diagnosis requests despite resolution by professional bodies to improve diagnosis referrals.

    You can approach the Primary Care Trust in your area and ask for advice on getting a diagnosis, and explaining the difficulties, and just the act of doing so might spur some improvement.

Children
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