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GP's not helping with diagnosis - advice please

Kirst7

Hi,

This is regarding my niece who is 5 years old (will be 6 in August). She has not formally been diagnosed with Aspergers condition as the Doctors will not accept her behaviour.

She is not like a normal 5 year old, she is well behaved/quiet/happy to play on her own.

When my sister went to the doctors about her behaviour they put it down to parenting. Having researched into it, aspergers fits her behaviour perfectly.

She is the perfect little girl, so bright for her age. But she just doesn't seem like a happy 5 year old.

Please can someone advise me on how I can get a referral to speak to someone to help diagnose her when the NHS won't help??

Parents

  • Can I just say, little bit uncomfortable with the word disease. Condition or syndrome may be a more accurate description.

    In answer to your question, you can go down the private route if you are not having much luck with the NHS, however, I would try again if your concerns are well founded.

    I believe there are Care Pathways set out that practitioners should follow. I'd be tempted to see a different Doctor in the practice if this GP is obstructive about referral. It may be that the GP is not Autism aware and also does not know how Autistic girls mask and present. I've often found it helps if two adults go to GP to address these sorts of issues, but making a list of the things you've identified, before you go, will also limit the chances of forgetting something when you go, which is what always happens to me.

    Good luck, 

    Coogy

    PS. A user of the forum has just posted a really nice poster re girls and diagnosis, feel free to share it. The list is by no means exhaustive, but it does highlight the difficulties we have.

    community.autism.org.uk/.../autism-girls-signs-poster

Reply

  • Can I just say, little bit uncomfortable with the word disease. Condition or syndrome may be a more accurate description.

    In answer to your question, you can go down the private route if you are not having much luck with the NHS, however, I would try again if your concerns are well founded.

    I believe there are Care Pathways set out that practitioners should follow. I'd be tempted to see a different Doctor in the practice if this GP is obstructive about referral. It may be that the GP is not Autism aware and also does not know how Autistic girls mask and present. I've often found it helps if two adults go to GP to address these sorts of issues, but making a list of the things you've identified, before you go, will also limit the chances of forgetting something when you go, which is what always happens to me.

    Good luck, 

    Coogy

    PS. A user of the forum has just posted a really nice poster re girls and diagnosis, feel free to share it. The list is by no means exhaustive, but it does highlight the difficulties we have.

    community.autism.org.uk/.../autism-girls-signs-poster

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