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My 5 year old has just been diagnosed with Autism... What now?

Danielle1985

Hi all,

im new to the forum and am looking for advice, my son has been undergoing assessments for 2 1/2 years and had an ADOS just before Christmas, we went back to the pediatrics last week and he confirmed a diagnosis of Autism.

The Dr explained that a child who scored 1-7 does not have asd

a child who scores 8 has ASD and a child that scores 9 and above has Autism. 

My son scored 13... Does anyone have any information as to what the scores mean, as I had that much to take in I forgot to ask the Dr. And what is the difference between being diagnosed with ASD and Autism?  I'm hoping to educate myself as much as possible in the coming months as I want to give my son all the help I possibly can.

  • thanks very much for these replies. im looking into some courses to attend and have had a meeting with school this week about his additional needs.

    I really hope your son manages to find work, im sure the perfect job is out there for him

  • and biology .. sorry my son just told me to point that out haha

  • the first diagnosis is scary ,, and as far as the spectrum goes .. you know your own child and you have to be confident in that .. you and you only know what help your child needs .. try and be strong in asking for that help .. i personally found that being brutally honest meant my child who is now 22 got more help when i stood up than when i left it to those i thought i trusted .. hard work hun .. but i got there .. now my son has all his gcse's and A Level math, geography, physics and chemistry .. all we need now is someone to take a chance and employ him lol .. good luck hun x

  • Hello, not been on here in months but just saw your post. I too have a 5 year old son, 6 in May. He was diagnised as having autism a year ago. Our consultant said they no longer narrow it down but just say he's on the spectrum. No point system. He needs one on one to stay in mainstream school but we are in the process jointly with his school to apply for what was the old statement. I don't even know where to start with the what now question, I would be here all night. It's a constant journey. You start off clueless and helpless, then pick yourself up and find out one bit of info, from that you learn something else, attend a group, meet people in the same boat, learn more, discover more and so on and so on. It's tough And it amazes me how disjointed it all is. Different agencies, different terms,,also you have to ask for and chase up everything. its so frustrating. Then , after a while, you look at your to do list and realise youve actually got it more or less contained And it calms down and becomes easier. My son is my youngest of 4 boys. I had no experience with ASD. It's a massive learning curve.