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What is even the point of diagnosis??!!!

ThePinkPixie

My son is 15, coming up 16, and was diagnosed with ASD and ADHD in October. 

i've always known he's on the autistic spectrum but he's slipped through the net quite spectacularly, and I feel totally let down by the school and the system.  Anyways- apart from the school panicking he's going to fail his GCSEs (probably purely because of his league tables!) and throwing extra maths etc at him, very little has changed. I don't feel there is any support or understanding or anyone to turn to with regard to him leaving school and becoming 'independent' which he really isn't. 

I actually feel I've been punished for coping too well, and I'm pretty terrified about him going to college and getting there in one piece. And now I have to prove he needs help!!! Is the diagnosis itself not enough proof that he MAY actually need support???? how do I PROVE that my son won't go anywhere without his mum??!! Has no friends?! Is adamant he isn't going to college??!! And what's worse is his brother is 15 months younger and Mr Sociable, never home, really confident, and like a huge spotlight pointing at his brothers difficulties. I feel more alone than when I knew I was right pre diagnosis :( 

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  • Former Member
    Former Member

    Agree with what others have said. Coogy has been through this mill so she know's a lot of stuff.

    ThePinkPixie said:

    Right now my son gets nothing. The school refused to see a problem until the new senco was employed. Then from her employment to my sons diagnosis was a mere 3 months!!! That was this October . Shes good but I still feel very guarded. He IS very capable BUT he is autistic and he needs support. Socially and with his independance.

    Other schools are available. There are mainstream schools that have special support units for autisitic children. (these have a particular name but it escapes me for the moment) It sounds as though his current school isn't very aware of the issues so it could be time to move him.

    www.autism.org.uk/.../choosing-a-school-in-england.aspx

    My other comment is it may be worth going back to CAMHS again with less british reserve and more emotion and desparation (and a box of tissues?) Situations and circumstances change and they won't have said thaat they will never help.

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  • Former Member
    Former Member

    Agree with what others have said. Coogy has been through this mill so she know's a lot of stuff.

    ThePinkPixie said:

    Right now my son gets nothing. The school refused to see a problem until the new senco was employed. Then from her employment to my sons diagnosis was a mere 3 months!!! That was this October . Shes good but I still feel very guarded. He IS very capable BUT he is autistic and he needs support. Socially and with his independance.

    Other schools are available. There are mainstream schools that have special support units for autisitic children. (these have a particular name but it escapes me for the moment) It sounds as though his current school isn't very aware of the issues so it could be time to move him.

    www.autism.org.uk/.../choosing-a-school-in-england.aspx

    My other comment is it may be worth going back to CAMHS again with less british reserve and more emotion and desparation (and a box of tissues?) Situations and circumstances change and they won't have said thaat they will never help.

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