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What is even the point of diagnosis??!!!

ThePinkPixie

My son is 15, coming up 16, and was diagnosed with ASD and ADHD in October. 

i've always known he's on the autistic spectrum but he's slipped through the net quite spectacularly, and I feel totally let down by the school and the system.  Anyways- apart from the school panicking he's going to fail his GCSEs (probably purely because of his league tables!) and throwing extra maths etc at him, very little has changed. I don't feel there is any support or understanding or anyone to turn to with regard to him leaving school and becoming 'independent' which he really isn't. 

I actually feel I've been punished for coping too well, and I'm pretty terrified about him going to college and getting there in one piece. And now I have to prove he needs help!!! Is the diagnosis itself not enough proof that he MAY actually need support???? how do I PROVE that my son won't go anywhere without his mum??!! Has no friends?! Is adamant he isn't going to college??!! And what's worse is his brother is 15 months younger and Mr Sociable, never home, really confident, and like a huge spotlight pointing at his brothers difficulties. I feel more alone than when I knew I was right pre diagnosis :( 

Parents

  • I don't think I'm going to be much help, but I'm 18 and my diagnosis was important because it got me extra time in exams and a room to myself. This was really important in helping me pass my exams because I get really stressed when my brain goes blank and I can't read it properly so when I have extra time I have time to calm down and try and get the right answer, and I get less distracted and anxious because there's no one making noise or moving when I'm in a room on my own. The doctor who diagnosed me did a report to say where my difficulties were, I don't know how this works for everyone but is it possible to get a copy of that report for your son's school so that they know and can pass the information on to colleges? My mum found that getting support from school was really difficult too, for me and for two of my other brothers who are also autistic.

    I hope things get better for you and your son 

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  • I don't think I'm going to be much help, but I'm 18 and my diagnosis was important because it got me extra time in exams and a room to myself. This was really important in helping me pass my exams because I get really stressed when my brain goes blank and I can't read it properly so when I have extra time I have time to calm down and try and get the right answer, and I get less distracted and anxious because there's no one making noise or moving when I'm in a room on my own. The doctor who diagnosed me did a report to say where my difficulties were, I don't know how this works for everyone but is it possible to get a copy of that report for your son's school so that they know and can pass the information on to colleges? My mum found that getting support from school was really difficult too, for me and for two of my other brothers who are also autistic.

    I hope things get better for you and your son 

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