Correct service

Please can anyone help. I have approached the GP surgery a number of times now regarding difficulties I have been experiencing and my wish to seek an assessment for aspergers syndrome and ADHD by a specialist in these areas. I have had several professionals advise me to go for a formal diagnosis as I have been seen to display traits of both conditions and records show that I experienced these difficulties in childhood. My eldest daughter has also been diagnosed with ADHD and Aspergers and my other daughter is also undergoing assessment. I have already been diagnosed with OCD, social anxiety and depression. I believe these conditions are a result of undiagnosed and untreated ADHD and Aspergers. I also have a diagnosis of dyslexia which is often associated with ADHD and Aspergers. I feel there is plenty of evidence that it is well worth while me seeking this further referral. I have had to explain to several doctors and other professional that my personal and work life is being affected.

I feel I am at breaking point having to keep explaining myself and I am finding the appointments at the surgery humiliating in terms of the constant questioning as to what difference a diagnosis would make to my life. I did not feel the GPs at the surgery were helpful in supporting my wife and I when we sought assessment for our children and I am experiencing the same difficulties now I am seeking help.

During previous appointments at the surgery, I have been informed there are no appropriate service to assess for adult autism/adhd. On my behalf, my wife contacted the National Autistic Society, I was informed that this was not the case and there were in fact specialists within the area. I have also spoken with other adults who have been diagnosed within Derby/Derbyshire. I therefore made another appointment to discuss this further. A referral to the path finder service in Derby was made. During this appointment I requested that the referral was for a formal assessment for adhd/asd.

I was seen by a consultant psychologist. Whilst the appointment was helpful in some ways and enabled me to continue with further therapy sessions with my current therapist, the consultant informed me that he does not believe in ADHD in adults and therefore he would not be assessing me for this condition. During the course of the appointment he advised me that I had a number of autistic traits, however he felt that a diagnosis would be nothing more than a negative label. He then went on to diagnosis me with OCD, social anxiety disorder and clinical depression. I am very dissatisfied with the difficulties presented in seeking formal diagnosis.

I am seeking diagnosis to help me and my family have closure on some of my past difficulties and to continue gaining insight and treatment where necessary in order to move past the difficulties I have experienced due to lack of support, assessment and diagnosis. I attended the GP surgery again to request a referral who specialises in adult adhd/asd. The thought of another appointment and the possibility of lack of action caused me a great deal of anxiety. I persevered with this yet had to leave the appointment without a referral. Following a writen letter sent byself and over a week wait, I was innformed in writing that I would not be referred to this service and the assessment I have recieved was adequate to my needs. I wish to be referred to Dr Simon Taylor in Chesterfield to be able to finally get an appropriate assessment and get the closure I have been seeking. Please can anyone advise me on what I could do next.

Parents
  • As ADHD is genetic (http://www.wellcome.ac.uk/News/Media-office/Press-releases/2010/WTX062886.htm?gclid=CKiwkrenvLkCFVDItAodXlgAAg) that's a ridiculous thing for your GP to say.  It's not possible to grow out of something that is in your genes.

    Write to your doctor complaining that he is making clinical decisions based on his personal opinions, which fly in the face of medical facts which are accepted by the very NHS he works for, and ask for a referral again:

    http://www.nhs.uk/Conditions/Attention-deficit-hyperactivity-disorder/Pages/Symptoms.aspx

    "Symptoms in adults

    In adults, the symptoms of ADHD are more difficult to define. This is largely due to a lack of research into adults with ADHD.

    It is still uncertain whether ADHD can occur in adults without it first appearing during childhood, although it is known that symptoms of ADHD often persist from childhood into the teenage years and adulthood. Any additional problems or conditions experienced by children with ADHD, such as depression or dyslexia, are also likely to carry into adulthood.

    By the age of 25, an estimated 15% of people diagnosed with childhood ADHD still have a full range of symptoms, and 65% still have some symptoms that affect their daily lives.

    There is no definitive list of adult ADHD symptoms, and experts agree that simply applying the childhood symptoms to adults would not work. This is because the way in which inattentiveness, hyperactivity and impulsiveness affect adults is very different from the way they affect children.

    For example, hyperactivity tends to decrease in adults, while inattentiveness tends to get worse as the pressure of adult life increases. Also, adult symptoms of ADHD tend to be far more subtle than childhood symptoms.

    Below is a list of symptoms associated with adult ADHD:

    • carelessness and lack of attention to detail
    • continually starting new tasks before finishing old ones
    • poor organisational skills
    • inability to focus or prioritise
    • continually losing or misplacing things
    • forgetfulness
    • restlessness and edginess
    • difficulty keeping quiet and speaking out of turn
    • blurting responses, and poor social timing when talking to others
    • often interrupting others
    • mood swings
    • irritability and a quick temper
    • inability to deal with stress
    • extreme impatience
    • taking risks in activities, often with little or no regard for personal safety or the safety of others

    As with ADHD in children and teenagers, ADHD in adults can appear alongside many related problems or conditions. One of the most common conditions is depression. Other conditions that adults may have alongside ADHD include:

    • personality disorders
    • bipolar disorder, a condition that affects your moods, which can swing from one extreme to another
    • obsessive-compulsive disorder, a condition that causes obsessive thoughts and compulsive behaviour, such as cleaning constantly 

    Any problems you may have had as a child are likely to persist into adulthood, which can make life extremely difficult. For example, you may have problems:

    • finding and keeping employment
    • in relationships and social interactions
    • with drugs
    • with crime"

    www.helpguide.org/.../adhd_add_adult_symptoms.htm

    "Understanding ADD / ADHD in adults

    Attention deficit disorder is not just a problem in children. If you were diagnosed with childhood ADD/ADHD, chances are, you’ve carried at least some of the symptoms into adulthood. But even if you were never diagnosed with ADD/ADHD as a child, that doesn’t mean you can’t be affected by it as an adult."

    http://www.rcpsych.ac.uk/expertadvice/problemsdisorders/adhdinadults.aspx

    http://www.bbc.co.uk/sn/tvradio/programmes/horizon/adhd_adult_qa.shtml

    As for the consultant who said he viewed an autism label as negative, in view of the fact that he diagnosed you with other equally "negative" labels he is talking tosh.  Again, he is colouring his clinical decisions with his personal perspective.  I really do wonder whether there is a secret government directive to counteract what they are giving with one hand with the Autism Act & Autism Strategy, to fail to diagnose adults with autism, to avoid uptake of services.

    Write a formal complaint to your GP surgery.  Advise them of their legal duties according to statutory guidance.  Please see my thread about assessment and diagnosis in adults for further information.

    ETA: just noticed this thread is almost a year old and was bumped by a spam message.

Reply
  • As ADHD is genetic (http://www.wellcome.ac.uk/News/Media-office/Press-releases/2010/WTX062886.htm?gclid=CKiwkrenvLkCFVDItAodXlgAAg) that's a ridiculous thing for your GP to say.  It's not possible to grow out of something that is in your genes.

    Write to your doctor complaining that he is making clinical decisions based on his personal opinions, which fly in the face of medical facts which are accepted by the very NHS he works for, and ask for a referral again:

    http://www.nhs.uk/Conditions/Attention-deficit-hyperactivity-disorder/Pages/Symptoms.aspx

    "Symptoms in adults

    In adults, the symptoms of ADHD are more difficult to define. This is largely due to a lack of research into adults with ADHD.

    It is still uncertain whether ADHD can occur in adults without it first appearing during childhood, although it is known that symptoms of ADHD often persist from childhood into the teenage years and adulthood. Any additional problems or conditions experienced by children with ADHD, such as depression or dyslexia, are also likely to carry into adulthood.

    By the age of 25, an estimated 15% of people diagnosed with childhood ADHD still have a full range of symptoms, and 65% still have some symptoms that affect their daily lives.

    There is no definitive list of adult ADHD symptoms, and experts agree that simply applying the childhood symptoms to adults would not work. This is because the way in which inattentiveness, hyperactivity and impulsiveness affect adults is very different from the way they affect children.

    For example, hyperactivity tends to decrease in adults, while inattentiveness tends to get worse as the pressure of adult life increases. Also, adult symptoms of ADHD tend to be far more subtle than childhood symptoms.

    Below is a list of symptoms associated with adult ADHD:

    • carelessness and lack of attention to detail
    • continually starting new tasks before finishing old ones
    • poor organisational skills
    • inability to focus or prioritise
    • continually losing or misplacing things
    • forgetfulness
    • restlessness and edginess
    • difficulty keeping quiet and speaking out of turn
    • blurting responses, and poor social timing when talking to others
    • often interrupting others
    • mood swings
    • irritability and a quick temper
    • inability to deal with stress
    • extreme impatience
    • taking risks in activities, often with little or no regard for personal safety or the safety of others

    As with ADHD in children and teenagers, ADHD in adults can appear alongside many related problems or conditions. One of the most common conditions is depression. Other conditions that adults may have alongside ADHD include:

    • personality disorders
    • bipolar disorder, a condition that affects your moods, which can swing from one extreme to another
    • obsessive-compulsive disorder, a condition that causes obsessive thoughts and compulsive behaviour, such as cleaning constantly 

    Any problems you may have had as a child are likely to persist into adulthood, which can make life extremely difficult. For example, you may have problems:

    • finding and keeping employment
    • in relationships and social interactions
    • with drugs
    • with crime"

    www.helpguide.org/.../adhd_add_adult_symptoms.htm

    "Understanding ADD / ADHD in adults

    Attention deficit disorder is not just a problem in children. If you were diagnosed with childhood ADD/ADHD, chances are, you’ve carried at least some of the symptoms into adulthood. But even if you were never diagnosed with ADD/ADHD as a child, that doesn’t mean you can’t be affected by it as an adult."

    http://www.rcpsych.ac.uk/expertadvice/problemsdisorders/adhdinadults.aspx

    http://www.bbc.co.uk/sn/tvradio/programmes/horizon/adhd_adult_qa.shtml

    As for the consultant who said he viewed an autism label as negative, in view of the fact that he diagnosed you with other equally "negative" labels he is talking tosh.  Again, he is colouring his clinical decisions with his personal perspective.  I really do wonder whether there is a secret government directive to counteract what they are giving with one hand with the Autism Act & Autism Strategy, to fail to diagnose adults with autism, to avoid uptake of services.

    Write a formal complaint to your GP surgery.  Advise them of their legal duties according to statutory guidance.  Please see my thread about assessment and diagnosis in adults for further information.

    ETA: just noticed this thread is almost a year old and was bumped by a spam message.

Children
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