New Statutory body as an alternative to the NHS for mental health and hidden disability

Now that advances in medical science has uncovered more people in modern times, children, adolescents and adults alike, including in the post-Covid era, with mental health and hidden disabilities including autism, is it not now time to set up a separate statutory body, properly funded and properly managed, entirely seperate from the NHS, dealing exclusively with all mental health and hidden disability issues? We all know the problems of the NHS that have been going on for decades and are well-documented, of mismanagement and wastage, so is it not time for a fresh start with a new body, alongside implementing reforms within the NHS?

Parents
  • And one more thing to add before I bail out to walk my dogs.

    The centres should fundamentally be tasked not just to help the person that comes there negotiate the problems they encounter.  They should address the systemic problems they encounter that cause them....

  • One thing that would stop issues ia if ALL staff in All Buisnessea had to understand all disablitys but Bo they go on a crap awareness course where a man in ansuit twoks them what aswers to give Eto pass a one page test

  • This is the very reason why urgent amendments to the Autism Act 2009 must be made, with far greater enforcement powers (in a similar way to the health and safety laws) and with massively increased provision for police investigations and criminal prosecutions of senior management who are found not implementing the provisions correctly - only when we as autistic people have ever more draconian laws to protect our rights will we ever get anywhere - there is no point in having laws unless they are properly enforced and there also needs to be greater monitoring and supervision of senior management specially provided for in any amendments to the Autism Act 2009 

  • It must be full police investigation and criminal charges, nothing less - it’s also why since Covid, I have zero faith whatsoever in democracy and the democratic process regardless of political parties on either side, which along with parliament and the courts, has been nothing more than a charade of deception that gives the false illusion of us having a real say in anything, indeed democracy is itself corrupt by definition and is open and susceptible to all manner of infiltration, hijacking, corruption from within, compromise and even weaponisation against those that democracy is supposed to protect and serve, where our enemies will be enabled to use our own rights and freedoms against us in a selective manner where it suits their own purposes - at least with a military only government in power, we know where we stand - despite the bad rap throughout history and around the world regarding the actions of military “dictators” what is never focused on is the immense good that they did for their people when in power and after they were ousted from power, the regimes they controlled fell into disarray, until a new strong leader emerged and took control - we can still learn lessons from these regimes in order to avoid falling into the same pitfalls that they did, because it’s very clear that the current system is not working 

  • What about autistic people being such a clique albeit demonstrating that there is another way?

    I'm personally working all the time it seems to resolve my fears of "falling foul" of someone or another - and I'm gradually learning to overcome that fear.  I think that it is called "learned helplessness".

  • Please excuse my response to that which is made to   but - ME TOO an awful lot of the time - why it is so hard for me to bring the "bigger picture", "longer wavelength" view together I've looked to do in this thread.  As I have looked to explain: partly I ascribe this to the developmental "hard wiring" of my neurotypical brain and also the learnt psychological perspective of it being harder to accept that there can be a better way rather than just having to put up with it because of all the problems one might envisage or experience in trying to resolve it.  I personally come with a lifetime of baggage in that respect and I strongly suspect a lot of other autistic people do too.

  • I have made several posts in that respect in this thread   I respectfully refer you to those.

  • I’ve encountered this kind of “witches coven” woke leftist mindset too in supermarket retailing and only recently, one retail outlet was really strongly and blatantly pushing woke leftist agenda and ideologies in all of its stores, which since Covid, I came to realise was socially destructive precisely because it and globalist ideology is socially destructive - I emailed the CEO of that company saying that as a potential customer, I was really put off by such blatant messaging outside of its stores and since then, it has been taken down 

  • I try not to be combatitive with it, but what to me is genuine interest can seem to others like I'm deliberately trying to spoil something.

    That's exactly the situation I always find myself in, for the same reason. 

  • "The Clique", seems to be an ever present human organisational unit and woe betide you if you fall foul of it, as I have done so many, many times in so many areas, from anti-racism, to working in whole food shops. There are always a few who get into a huddle and try and tell others how to live.

  • Ok, I'll stop now. My overtrained brain is always asking questions of questions and challenging assumptions, I'm the sort of person who naturally see's links across a big picture and many subjects. I try not to be combatitive with it, but what to me is genuine interest can seem to others like I'm deliberately trying to spoil something. I guess it comes from hanging out with engineers who's first question is always, 'hows that going to work?' and academic historian training which teaches you to look at document or a theory and ask questions of it, who was it written for? etc.

    What do you see it looking like?

  • Fair point  I have proposed these organisations do not work without external audit elsewhere in the thread.

    Applying this to them seems appropriate.

    3. Funding & Legal "Clout" Without Starving Public Services
    None of this works without teeth, but we must be smart about accountability. Fining schools, NHS trusts, or local councils is counterproductive—it strips away scarce resources from classrooms and frontline services, ultimately punishing the very people we are trying to protect. Instead, the financial and structural accountability must flip.
    • Personal Accountability for Senior Management: Just like corporate directors face personal liability under Health and Safety laws, senior executives across all public and private bodies (Headteachers, Academy Trust CEOs, NHS Trust Directors, Council Chief Executives, and Corporate Managers) must face personal statutory penalties and professional disqualification if they willfully ignore accessibility laws or enforce policies causing systemic psychological harm.
  • I'd suggest that all those operational details would be completely up to the local staff, lived experience panels, and structure of the local hubs to sort out right there in place.  No rigid central planning that provides policy and procedure for every eventuality

    Ah, the downside with leaving it to local staff to decide the rules is that legal safeguards for anti-discrimination and even health & safety get tossed aside if they seem unimportant to the dominant personalities in the hub. It's the reason for major hospital failures that hit the headlines. If the rules are lax and left to local interpretatiuon without regular external checking, some individuals will dominate and run the place to suit themselves.

  • Thanks   
    It seems to me that you and I are working on different wavelengths here. I to me seem to be trying to lay out the "long wavelength" big picture architecture - the legal framework staffing and ring-fenced funding needed to stop people having such horrible experiences or falling through the cracks of society's "care" by getting rid of the "triage trap." and the like.  Meanwhile, you're looking at everything through the lens of immediate, day-to-day friction and mini wavelength anxieties.
    Fair enough and good on you - these day to day realities are critical and I did ask to stress test the draft.  However trying to solve every single operational case and situation centrally in a forum thread is exhausting and I think pulls us away from the core structure picture which came out of the OP.
    I'd suggest that all those operational details would be completely up to the local staff, lived experience panels, and structure of the local hubs to sort out right there in place.  No rigid central planning that provides policy and procedure for every eventuality - just empowering the people ther to actually work out and do what's right for the individuals and the community, which is exactly what frontline workers have been trying to do for years.
    I've worked in an institution that systematically dismantled this sort of team work and independance for the past 25 years.  Just like a lot of other people my autistic mind goes straight away to all the battles I've had trying to push back against that change and I live with the burnout and trauma of that now.
    12 days ago I wrote in this thread
    It is psychologically safer to believe that a system is broken because it has to be.
    I tried to break the spell

    Maybe for others but maybe also mostly for myself.  To do that I've being trying to do something that for me is really hard - gather together all the small bits that my mind desperately wants to fixate on and bring them together in a "big picture" to get things back to a "bottom-up" solution for a desperate public need that I personally desperately need to.

    OK maybe it'll likely not happen, but if it is to happen I personally think there is a need to start focusing on what it will look like not what it won't look like.

Reply
  • Thanks   
    It seems to me that you and I are working on different wavelengths here. I to me seem to be trying to lay out the "long wavelength" big picture architecture - the legal framework staffing and ring-fenced funding needed to stop people having such horrible experiences or falling through the cracks of society's "care" by getting rid of the "triage trap." and the like.  Meanwhile, you're looking at everything through the lens of immediate, day-to-day friction and mini wavelength anxieties.
    Fair enough and good on you - these day to day realities are critical and I did ask to stress test the draft.  However trying to solve every single operational case and situation centrally in a forum thread is exhausting and I think pulls us away from the core structure picture which came out of the OP.
    I'd suggest that all those operational details would be completely up to the local staff, lived experience panels, and structure of the local hubs to sort out right there in place.  No rigid central planning that provides policy and procedure for every eventuality - just empowering the people ther to actually work out and do what's right for the individuals and the community, which is exactly what frontline workers have been trying to do for years.
    I've worked in an institution that systematically dismantled this sort of team work and independance for the past 25 years.  Just like a lot of other people my autistic mind goes straight away to all the battles I've had trying to push back against that change and I live with the burnout and trauma of that now.
    12 days ago I wrote in this thread
    It is psychologically safer to believe that a system is broken because it has to be.
    I tried to break the spell

    Maybe for others but maybe also mostly for myself.  To do that I've being trying to do something that for me is really hard - gather together all the small bits that my mind desperately wants to fixate on and bring them together in a "big picture" to get things back to a "bottom-up" solution for a desperate public need that I personally desperately need to.

    OK maybe it'll likely not happen, but if it is to happen I personally think there is a need to start focusing on what it will look like not what it won't look like.

Children
  • It must be full police investigation and criminal charges, nothing less - it’s also why since Covid, I have zero faith whatsoever in democracy and the democratic process regardless of political parties on either side, which along with parliament and the courts, has been nothing more than a charade of deception that gives the false illusion of us having a real say in anything, indeed democracy is itself corrupt by definition and is open and susceptible to all manner of infiltration, hijacking, corruption from within, compromise and even weaponisation against those that democracy is supposed to protect and serve, where our enemies will be enabled to use our own rights and freedoms against us in a selective manner where it suits their own purposes - at least with a military only government in power, we know where we stand - despite the bad rap throughout history and around the world regarding the actions of military “dictators” what is never focused on is the immense good that they did for their people when in power and after they were ousted from power, the regimes they controlled fell into disarray, until a new strong leader emerged and took control - we can still learn lessons from these regimes in order to avoid falling into the same pitfalls that they did, because it’s very clear that the current system is not working 

  • What about autistic people being such a clique albeit demonstrating that there is another way?

    I'm personally working all the time it seems to resolve my fears of "falling foul" of someone or another - and I'm gradually learning to overcome that fear.  I think that it is called "learned helplessness".

  • Please excuse my response to that which is made to   but - ME TOO an awful lot of the time - why it is so hard for me to bring the "bigger picture", "longer wavelength" view together I've looked to do in this thread.  As I have looked to explain: partly I ascribe this to the developmental "hard wiring" of my neurotypical brain and also the learnt psychological perspective of it being harder to accept that there can be a better way rather than just having to put up with it because of all the problems one might envisage or experience in trying to resolve it.  I personally come with a lifetime of baggage in that respect and I strongly suspect a lot of other autistic people do too.

  • I have made several posts in that respect in this thread   I respectfully refer you to those.

  • I’ve encountered this kind of “witches coven” woke leftist mindset too in supermarket retailing and only recently, one retail outlet was really strongly and blatantly pushing woke leftist agenda and ideologies in all of its stores, which since Covid, I came to realise was socially destructive precisely because it and globalist ideology is socially destructive - I emailed the CEO of that company saying that as a potential customer, I was really put off by such blatant messaging outside of its stores and since then, it has been taken down 

  • I try not to be combatitive with it, but what to me is genuine interest can seem to others like I'm deliberately trying to spoil something.

    That's exactly the situation I always find myself in, for the same reason. 

  • "The Clique", seems to be an ever present human organisational unit and woe betide you if you fall foul of it, as I have done so many, many times in so many areas, from anti-racism, to working in whole food shops. There are always a few who get into a huddle and try and tell others how to live.

  • Ok, I'll stop now. My overtrained brain is always asking questions of questions and challenging assumptions, I'm the sort of person who naturally see's links across a big picture and many subjects. I try not to be combatitive with it, but what to me is genuine interest can seem to others like I'm deliberately trying to spoil something. I guess it comes from hanging out with engineers who's first question is always, 'hows that going to work?' and academic historian training which teaches you to look at document or a theory and ask questions of it, who was it written for? etc.

    What do you see it looking like?

  • Fair point  I have proposed these organisations do not work without external audit elsewhere in the thread.

    Applying this to them seems appropriate.

    3. Funding & Legal "Clout" Without Starving Public Services
    None of this works without teeth, but we must be smart about accountability. Fining schools, NHS trusts, or local councils is counterproductive—it strips away scarce resources from classrooms and frontline services, ultimately punishing the very people we are trying to protect. Instead, the financial and structural accountability must flip.
    • Personal Accountability for Senior Management: Just like corporate directors face personal liability under Health and Safety laws, senior executives across all public and private bodies (Headteachers, Academy Trust CEOs, NHS Trust Directors, Council Chief Executives, and Corporate Managers) must face personal statutory penalties and professional disqualification if they willfully ignore accessibility laws or enforce policies causing systemic psychological harm.
  • I'd suggest that all those operational details would be completely up to the local staff, lived experience panels, and structure of the local hubs to sort out right there in place.  No rigid central planning that provides policy and procedure for every eventuality

    Ah, the downside with leaving it to local staff to decide the rules is that legal safeguards for anti-discrimination and even health & safety get tossed aside if they seem unimportant to the dominant personalities in the hub. It's the reason for major hospital failures that hit the headlines. If the rules are lax and left to local interpretatiuon without regular external checking, some individuals will dominate and run the place to suit themselves.