My daughter has trouble with mental health problem

I’m wondering if anyone else has experienced difficulties getting appropriate support for a mental health condition. My daughter has been struggling with bipolar disorder for quite some time and has been on a waiting list to see a psychiatrist for several months.

While she has been waiting, she was offered support from a community mental health nurse. Unfortunately, she didn’t feel that the two professionals she met were particularly helpful or understanding. Some of the comments they made about bipolar disorder felt very inappropriate to her. One of them told her about another patient with bipolar disorder who had become extremely distressed and said they were afraid the person might become violent. They also made a comment along the lines of, “Everyone seems to be looking for a diagnosis these days.” My daughter found these comments upsetting and became afraid to speak openly about what she was experiencing.

She was later admitted to a psychiatric hospital for several weeks. During her stay, she experienced several severe episodes where she became extremely distressed and agitated. She felt that the environment and the way staff approached her made things worse rather than helping her calm down.

On one occasion, staff entered her room and continued trying to engage with her even after she repeatedly asked to be left alone. As her distress escalated, she was given medication to control the episode, and on another occasion medication was administered even after she had already calmed down. Some of the comments made by staff were also very upsetting, including telling her that her behaviour was “disgusting” and suggesting that she was simply seeking attention.

After these experiences, she has completely lost trust in mental health professionals. I’m now unsure how I can support her or encourage her to seek help again. She had previously been willing to consider medication, but since her hospital admission she refuses to take any. I suspect this is largely because of the traumatic experience she had with medication and the way her episodes were handled in hospital.

Has anyone else experienced something similar? How can I help her rebuild trust with mental health professionals without making her feel pressured?

Parents
  • Hi David.  Your daughter has been through some incredibly difficult times, and I really feel for you both.  It's no wonder she feels like she cannot trust medical professionals any longer.  It is good to hear that she has such a supportive parent like yourself on her side though.

    I am sure that our online community will have some advice for you (but quick reminder of Rule 6 to everyone - no medical advice please!), but I would also like to share some NAS guidance pages that you may find helpful:

    Bipolar disorder - includes links to types of treatment and strategies to try and help in managing bipolar disorder.

    Inpatient mental health hospitals - includes information on best practice for inpatient mental health care for autistic people, as well as what should happen once a person has been discharged.

    You can also search our Autism Services Directory for details of counsellors, therapists and other support available in your area tailored specifically for or adapted to autistic people.

    I hope you find this information helpful, and am truly wishing you and your daughter all the best.  Know that you are not alone, and that NAS and the online community is always here for you.  Please do feel free to get back in touch and let us know how things are going.

    - Nicola Mod

Reply
  • Hi David.  Your daughter has been through some incredibly difficult times, and I really feel for you both.  It's no wonder she feels like she cannot trust medical professionals any longer.  It is good to hear that she has such a supportive parent like yourself on her side though.

    I am sure that our online community will have some advice for you (but quick reminder of Rule 6 to everyone - no medical advice please!), but I would also like to share some NAS guidance pages that you may find helpful:

    Bipolar disorder - includes links to types of treatment and strategies to try and help in managing bipolar disorder.

    Inpatient mental health hospitals - includes information on best practice for inpatient mental health care for autistic people, as well as what should happen once a person has been discharged.

    You can also search our Autism Services Directory for details of counsellors, therapists and other support available in your area tailored specifically for or adapted to autistic people.

    I hope you find this information helpful, and am truly wishing you and your daughter all the best.  Know that you are not alone, and that NAS and the online community is always here for you.  Please do feel free to get back in touch and let us know how things are going.

    - Nicola Mod

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