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“Hallucinations” at the wake-sleep and sleep-wake boundary, does anyone else get these?

Alice-nice-Alice

They started around 2017 whilst caring full time for my mum. I went to my gp who basically dismissed them as “harmless”, her word, and that the correct terms are hynopompic and hypnogogic hallucinations (I can never remember which is which), and sent me home with no treatment, other than the usual leaflet on “sleep hygiene” (I hate that phrase).

Well I don’t regard them as harmless, and recently theyve been getting worse again. Does anyone else suffer with these? If so I would be most interested to hear your experiences and if anything helps minimise them?

They are I think part of a group of symptoms known as parasomnias, Ive tried several times to get NHS help but no one will discuss them with me, I dud succeed in getting a sleep clinic referral but they, inevitably, didn’t happen the nights they wired me for tests. 


Thanks

A

Parents

  • It's happened to me a lot over the years, to the point I'm not sure it's hypnopompic hallucinations as it happens before I sleep and just after I wake up. I've seen "Shadow people"  a lot within seconds of waking up. I've also had noises and sounds carry over from my dreams that get heard in the real world (One example from my childhood was where I had a dream in a toy store, dropped the toy, and my wakeup was simultaneous with the dream so I heard the toy fall on my bedroom floor). I've also had mornings where I seem to struggle to get "motivated" so when I'm out of bed I can still feel I'm dreaming for a few minutes or so until I'm a bit more regulated.

    A more common phenomena I have though is just as I get to sleep sleep (as in, turn over and finally drift off) my body goes haywire, like fight or fight, it's either a feeling of falling, getting crushed or eaten alive, either way I'll usually wake right up from my sleep within seconds screaming "OH SH**" or "F-word HELL!". I'm wide awake after that usually. 

    The only real catalyst is having an atrocious sleep pattern. I can do anything from only get 30 minutes sleep, wake up in double figures in one night (I'll still be too tired to do anything, but I'll know I'm awake) and have frequent night terrors (despite the fact I'm aware I am dreaming due to frequent lucid dream attempts). There's no way I could ever share a bed with a partner sadly.

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  • It's happened to me a lot over the years, to the point I'm not sure it's hypnopompic hallucinations as it happens before I sleep and just after I wake up. I've seen "Shadow people"  a lot within seconds of waking up. I've also had noises and sounds carry over from my dreams that get heard in the real world (One example from my childhood was where I had a dream in a toy store, dropped the toy, and my wakeup was simultaneous with the dream so I heard the toy fall on my bedroom floor). I've also had mornings where I seem to struggle to get "motivated" so when I'm out of bed I can still feel I'm dreaming for a few minutes or so until I'm a bit more regulated.

    A more common phenomena I have though is just as I get to sleep sleep (as in, turn over and finally drift off) my body goes haywire, like fight or fight, it's either a feeling of falling, getting crushed or eaten alive, either way I'll usually wake right up from my sleep within seconds screaming "OH SH**" or "F-word HELL!". I'm wide awake after that usually. 

    The only real catalyst is having an atrocious sleep pattern. I can do anything from only get 30 minutes sleep, wake up in double figures in one night (I'll still be too tired to do anything, but I'll know I'm awake) and have frequent night terrors (despite the fact I'm aware I am dreaming due to frequent lucid dream attempts). There's no way I could ever share a bed with a partner sadly.

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