Closed doors - nobody seems bothered

Both my wife and I have family with Autism & Aspergers and can see in our 6 year old traits from both Autism & Aspergers (if that's possible?). Both sides battled with hell for years and years to get a diagnosis and I feel we're going to be in the same boat.

We talk to the school and they say "he's where he needs to be in terms of his writting/reading but we'll monitor the situation". But nothing ever happens apart from meetings with the school family liason woman who just says "you should try parenting classes and we'll send the school nurse round to your home to see whats going on".

We've also seen the GP who says "I can't see a problem, have you tried parenting casses?". This annoys the hell out of me as it's like these parenting classes are the be all & end all and that the school are ignoring our worries and the it feels like the longer it's left the worse anxiety he is getting too.

Parents
  • No GP doesn't need to refer, you commission independant proffessionals to assess your sons needs. Follow my advice with writing down all the traits you witness though and send it to each assessor in turn along with the reports you recieve from previous assessments. This comprehensive list may help.

    www.autism-world.com/.../

    High functioning doesn't mean he doesn't have Autism/ASD. Just because he's where he's at academically, doesn't show the whole picture and teachers often overlook that.

    Who you see depends on where in the country you live, although having said that I've travelled miles to get my kids assessed by the person with the correct experience. Each field, OT, ED Psych, SALT etc has their own register. Start with the most important for your son first. eg. 

    www.bps.org.uk/.../find-psychologist

    These assessments don't come cheap and are just as much about rulling things out as they are about identifying difficulties. If they show he has needs, once you are armed with the evidence by way of the reports you need, return to your GP and insist on and assessment for ASD. If he refuses show him your evidence and he will have no option.

    Being taken seriously is a common problem discussed on this forum. Don't take it personally, many have experienced your difficulties.

    If you need any more advice just ask on here. People are really helpful.

    Good Luck

    Coogybear

Reply
  • No GP doesn't need to refer, you commission independant proffessionals to assess your sons needs. Follow my advice with writing down all the traits you witness though and send it to each assessor in turn along with the reports you recieve from previous assessments. This comprehensive list may help.

    www.autism-world.com/.../

    High functioning doesn't mean he doesn't have Autism/ASD. Just because he's where he's at academically, doesn't show the whole picture and teachers often overlook that.

    Who you see depends on where in the country you live, although having said that I've travelled miles to get my kids assessed by the person with the correct experience. Each field, OT, ED Psych, SALT etc has their own register. Start with the most important for your son first. eg. 

    www.bps.org.uk/.../find-psychologist

    These assessments don't come cheap and are just as much about rulling things out as they are about identifying difficulties. If they show he has needs, once you are armed with the evidence by way of the reports you need, return to your GP and insist on and assessment for ASD. If he refuses show him your evidence and he will have no option.

    Being taken seriously is a common problem discussed on this forum. Don't take it personally, many have experienced your difficulties.

    If you need any more advice just ask on here. People are really helpful.

    Good Luck

    Coogybear

Children
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