Unfair surverys

I've just done some of these and it's really striking how few of them are aimed at people who aren't in a wheelchair or have loads of aids, or who live outside of towns and cities and those of us for whom tech has no solutions.

A bit disapointing really but I filled the in any way and hopefully they'll be read by a human and it will make them think a little?

Parents
  • I think that's important too, as the people making them are only thinking of disability in the most obvious sense, and they in fairness will have a lot, but it's good to address how things like autism can also struggle with things a lot. I've not looked at them, but good to know someone is representing! (And I've always thought you are quite good at pinpointing issues).

  • Thanks CW, I didn't find difficult, but I did find them a bit alienating, I think I've got one more to do. I do wonder at times why such organisations send us these surveys when they have so little to do with ND, or only as part of multidisabled life.

    I did coin a new phrase Disability Washing, I think I invented it, but its when places say they're disability friendly or ND friendly when what they mean is they have a disabled toilet and wider checkouts and do an hours quiet time at 8am on a saturday morning before any deliveries have come in and we have even less choice, the shop just wants to get people at a quiet time because few people want to get up at sparrow fart on a saturday morning to go shopping.

    I said quite a bit about what its like to be "walking wounded" as opposed to being a wheelchair user and how difficult it is when you have no obvious disability to use a disabled and parent and child parking space because you need to open your car door all the way, without getting shouted at.

    I talked a lot about smells and how smells can really make us ill and can stop us doing things or going places. I talked quite a lot about allergies too, especially multiple allergies and the effects they have on things like travel and how so many people still don't understand or think it funny to sneak something someones intollerant too into a food.

    I think what they really wanted though was ideas for redesigning bollards and pavement textures

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  • Thanks CW, I didn't find difficult, but I did find them a bit alienating, I think I've got one more to do. I do wonder at times why such organisations send us these surveys when they have so little to do with ND, or only as part of multidisabled life.

    I did coin a new phrase Disability Washing, I think I invented it, but its when places say they're disability friendly or ND friendly when what they mean is they have a disabled toilet and wider checkouts and do an hours quiet time at 8am on a saturday morning before any deliveries have come in and we have even less choice, the shop just wants to get people at a quiet time because few people want to get up at sparrow fart on a saturday morning to go shopping.

    I said quite a bit about what its like to be "walking wounded" as opposed to being a wheelchair user and how difficult it is when you have no obvious disability to use a disabled and parent and child parking space because you need to open your car door all the way, without getting shouted at.

    I talked a lot about smells and how smells can really make us ill and can stop us doing things or going places. I talked quite a lot about allergies too, especially multiple allergies and the effects they have on things like travel and how so many people still don't understand or think it funny to sneak something someones intollerant too into a food.

    I think what they really wanted though was ideas for redesigning bollards and pavement textures

Children
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