Faecal incontinence

My 36yr old son has started becoming incontinent having never been so before. It has coincided with him having to move from his supported accommodation because it closed down. He spends weekends with us. I understand this is difficult but it has been going on for months and is not improving. We have had advice from an incontinence nurse and I have tried being patient, being annoyed, rewards, talking to him and many other things none of which are working. We can only hope it improves as he gets used to a new flat during the week but any suggestions/support welcome. I am at the end of my tether with it - it is horrible! Thanks

Parents
  • I am sure you / the Nurse / his GP are likely to have already considered if there have been any new / different dosage medications / missed repeat prescriptions recently. 

    However, sometimes what may be overlooked for Autistic people - is that they can experience more sensitive gastrointestinal upset from a different brand / manufacturer with seemingly minor ingredient changes to a usual medication.  Not usually so much about the active ingredient - more likely so, with regard to changes to the other ingredients in the medication.

    Some people can also be much more sensitive, than others, to a change in water pH used in food / beverages / brushing teeth.

    Maybe, also double-check the correct temperature is being maintained in his flat's fridge.

    On another practical note; it might be worth registering both his flat and your home with the free utilities (electricity, water & gas) Priority Service Register to ensure it is possible to maintain hygiene and laundry in the event of utility service interruptions in your area.

    https://www.thepsr.co.uk/

    You can register on behalf of someone else who would potentially struggle to make contact themselves.

    For one of our relatives, I have also registered their address for them but listed my phone number.  This means e.g. bottled water gets automatically delivered to their address - but I receive the updates from the firm and then myself handle the onward (more appropriate) information / support delivery to the individual.

  • Thanks. I will look into the PSR. Other people have told me to inform services that he is disabled

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