My son is seventeen and has been diagnosed for some years now.
He has suffered with sleep issues all of his life and is currently assigned to a Sleep specialist. He also suffers with Apnia type symptoms, where he stops breathing for periods during his sleep.
He was given an oxygen monitor for one night which proved fairly useless. (He tore it off in his sleep and I found it dangling in the morning.)
Additionally, he was given a watch to wear to monitor his sleep patterns. This was slightly more affective as it was physically strapped to him.
He often sufferes with night terrors and shouts out in his sleep. All this has been recorded on the chart that came with the watch. As is typical with these things he hasn't had a major terror whislt wearing the device, but smaller shouting episodes.
My question is that on one of the nights he wet himself, presumably in a terror. Often if he has one and I catch him in time i'm able to get him to the toilet in a sleep state. Fortunately, he seldom remembers these so it limits his embarressment. On this occasion, he wet himself in his bed and was very destrught in the morning.
My dilema is that he doesn't want this incident recorded on his notes, even though it's a very real part of his condition. When I tried to alay his fears he insisted that I leave it off. Saying, 'Mum i'm 17, it's embarressing.'
His DLA notes include details about his night time difficulties, although i'm not sure he's aware of that. I guess my question is do I record it or not?
As a parent i have no desire to cause him distress and don't want to betray his confidence, but if the specialist is to help with his difficulties, my feeling is that they need to know. What should I do?
