need help abit confused adult assessment/diagnosis

Hi everyone , My son has never been diagnosed he is 22 and has moderate learning difficulties and challenging behaviour issues. I have recently challenged the pyscologist and a social worker as they were not doing there job right and was fobbing us off with cerain stuff that i went to PALS . Now we are told that my son is going to have to do a cogniative assessment to see where he is after me giving them quite a lot of paperwork then to do an ADI R all by himself and that im not allowed in the room . is this right as I have been in the room with him all his life since he was little child . and what do these 2 assessment involve as I thought I had to give a load down on his childhood . Confused .com . I also kept saying that I thought he had a cogniative assessment to be statemented for special educational needs for a a certain school not mainstream maybe I am wrong need some advice urgently . 

Parents
  • Your son is entitled to have an advocate present, but it must be his decision as he is an adult. He is entitled to choose you, or anyone else, to be his advocate. But he must say that's what he wants, not you. You could write a letter together that he signs, to prove his wishes. It would also be evidence that he has asked, should you need to contest a refusal. It must be informed consent, so he must understand. If you go to http://www.easyhealth.org.uk you will find easyread information on all sorts of issues. You can work through these together. They can be useful, even for people who don't have learning disabilities as they often explain complex issues in easy terms. (I have no connection to Easyhealth, but find them useful).

    At the test though, it is possible that you may not be the right person to be in the room as he may feel inhibited from answering certain questions with a close relative present. Why don't you seek advice, to ensure he is not alone, but that he benefits from the assessment? The NAS Helpline might be best, or perhaps Mencap.

Reply
  • Your son is entitled to have an advocate present, but it must be his decision as he is an adult. He is entitled to choose you, or anyone else, to be his advocate. But he must say that's what he wants, not you. You could write a letter together that he signs, to prove his wishes. It would also be evidence that he has asked, should you need to contest a refusal. It must be informed consent, so he must understand. If you go to http://www.easyhealth.org.uk you will find easyread information on all sorts of issues. You can work through these together. They can be useful, even for people who don't have learning disabilities as they often explain complex issues in easy terms. (I have no connection to Easyhealth, but find them useful).

    At the test though, it is possible that you may not be the right person to be in the room as he may feel inhibited from answering certain questions with a close relative present. Why don't you seek advice, to ensure he is not alone, but that he benefits from the assessment? The NAS Helpline might be best, or perhaps Mencap.

Children
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