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Support or lack of

Expecto_Patronum

I am definitely getting ahead of myself here but that is what my little brain does. I've recently had some medical issues that I've been to the doctors about. They are running some tests but did say if the tests don't show anything they will probably refer it on for further investigation. Me being me, I googled the details of this and the further investigation is generally done under sedation which means you have to have someone pick you up from this hospital and stay with you afterwards. I am not in a position where I have anybody that I could ask to do this.

I have tried googling support that the hospital may be able to provide and came up with nothing. Now I know this is a hypothetical situation and the rational response is, wait and see what your test results are like and deal with this if it actually gets referred.

But it's made me think. I cannot be the only person that would be in this position of not being able to be picked up from the hospital. So what I'm wondering is a) are there any supports actually available for unsupported autistic patients b) has anyone ever actually been in this situation and c) if the answer to a and b is no, do they just refuse to do non emergency procedures if the patient is unable to provide someone to collect them.

Parents

  • I have had several surgical procedures over the last few years, and I have two more upcoming procedures. The whole thing about needing somebody to accompany me home and stay with me is stressing me out.

    I was told that surgery would not go ahead unless I had someone who could take me home and stay with me, and on two occasions I had to cancel surgery because I didn’t have anybody available. A couple of times I have said someone (taxi) is at the hospital door waiting for me, and they have reluctantly let me leave the ward on my own. 

    The NHS here is at breaking point and they won’t let people stay an extra day, although they always used to when things weren’t so bad. 

    I had a knee replacement a while back in Lithuania. I drove my automatic car to the airport, stayed a couple of weeks and drove home again. The medical people looked after my transport and care within Lithuania. It worked out very well so I will be returning in the future to have my other knee done, although this time no driving as it will be the right knee.

Reply

  • I have had several surgical procedures over the last few years, and I have two more upcoming procedures. The whole thing about needing somebody to accompany me home and stay with me is stressing me out.

    I was told that surgery would not go ahead unless I had someone who could take me home and stay with me, and on two occasions I had to cancel surgery because I didn’t have anybody available. A couple of times I have said someone (taxi) is at the hospital door waiting for me, and they have reluctantly let me leave the ward on my own. 

    The NHS here is at breaking point and they won’t let people stay an extra day, although they always used to when things weren’t so bad. 

    I had a knee replacement a while back in Lithuania. I drove my automatic car to the airport, stayed a couple of weeks and drove home again. The medical people looked after my transport and care within Lithuania. It worked out very well so I will be returning in the future to have my other knee done, although this time no driving as it will be the right knee.

Children
  • in reply to ArchaeC

    That sounds really tough, especially having to manage everything on your own.

    You’ve handled so much already. I hope this next time goes smoothly and that you get the care and kindness you deserve.

    (⁠•⁠‿⁠•⁠)

  • in reply to ArchaeC

    This is my big concern. It seems crazy to me that there is no accomodation for someone who doesn't have someone that can pick them up.

    I am wary of lying because if I did get taken home by a taxi and then had issues due to the sedation, no one would know. Unlikely but possible.

    It seems crazy that they would deny you surgery because you don't know people.

    I know NHS struggles but they really need to do better for disabled patients. 

    I hope your upcoming procedures are successful.