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Support or lack of

Expecto_Patronum

I am definitely getting ahead of myself here but that is what my little brain does. I've recently had some medical issues that I've been to the doctors about. They are running some tests but did say if the tests don't show anything they will probably refer it on for further investigation. Me being me, I googled the details of this and the further investigation is generally done under sedation which means you have to have someone pick you up from this hospital and stay with you afterwards. I am not in a position where I have anybody that I could ask to do this.

I have tried googling support that the hospital may be able to provide and came up with nothing. Now I know this is a hypothetical situation and the rational response is, wait and see what your test results are like and deal with this if it actually gets referred.

But it's made me think. I cannot be the only person that would be in this position of not being able to be picked up from the hospital. So what I'm wondering is a) are there any supports actually available for unsupported autistic patients b) has anyone ever actually been in this situation and c) if the answer to a and b is no, do they just refuse to do non emergency procedures if the patient is unable to provide someone to collect them.

Parents

  • That sounds so hard to face on your own.

    I honestly wish I could go with you, just so you didn’t have to do it alone.

    Hopefully the hospital can help sort something out, maybe patient transport or someone who can stay with you for a bit. You shouldn’t have to do this by yourself.

  • in reply to Lonehare12

    Thank you. That's very kind of you.

    There's a possibility it won't even happen. But yes, I need to wait and see what happens with the other tests first and then if the referral is made, I need to have a good conversation with the hospital. Advocating for yourself is just so hard.

  • in reply to Expecto_Patronum

    I'm with you on having to make plans, to cover all bases. I think it's because I don't cope well with uncertainty. My brain is desperately trying to get an answer to an unanswerable question, in my case anyway.

    I’m glad you’re thinking about having that conversation with the hospital. Just knowing you’re planning it and taking it step by step is already a huge thing.

    You’re not alone in this.

Reply
  • in reply to Expecto_Patronum

    I'm with you on having to make plans, to cover all bases. I think it's because I don't cope well with uncertainty. My brain is desperately trying to get an answer to an unanswerable question, in my case anyway.

    I’m glad you’re thinking about having that conversation with the hospital. Just knowing you’re planning it and taking it step by step is already a huge thing.

    You’re not alone in this.

Children
  • in reply to Expecto_Patronum

    It’s exhausting, isn’t it?

    I hope the blood test goes okay and your GP gives you a bit more clarity.

    Sometimes just knowing what’s next helps a little.

  • in reply to Lonehare12

    Yes I am the same. I have to go through all the eventualities. If there is uncertainty in my life I will make up a whole host of imaginary outcomes to fill that uncertainty. It is not my favourite part of my brain.

    Yes. Need to get through a blood test this week and then make another appointment with my GP. I will at least then know whether he intends to refer it on. He definitely said that it would be a non urgent referral so I'd imagine there could be a good year possibly before I'll even get seen by the hospital.