Hi all , if possible i would like to know if anyone can help me with some information on diagnostic /referral times and how to pursue matters further with my local CCG.
after completing the following tests with my psychologist (MCMI-III , ASQ ,EQ ) she suggested i may have aspergers and said she would put me forward for more specialist testing.
after hearing nothing for 6 weeks i contacted who i was refereed to myself and have been told the waiting time is ...12 months , obviously - to me this is totally unacceptable as it is hindering my recovery and what treatment options are available to me.
i have read the NICE autism guidelines and under care pathway (taken from the autism quality standard) it says that
'People with possible autism who are referred to an autism team for a diagnostic assessment have the diagnostic assessment started within 3 months of their referral. '
the above also come under quality measures , this is a link to where i am looking..
pathways.nice.org.uk/.../autism
if anyone knows i would like to know how to pursue the matter (do i contact my GP or CCG and tell them 12 months is not good enough - if CCG who do i speak to? )
many thanks in advance
Thanks for your response. I am waiting for the government ombudsman to look at my complaint to the CCG about waiting times. My MP said there will be a response if my complaint is "valid". I suppose that will depend on the person looking at it knowing something about autism.
We have a difficult time accessing services if our GPS do not know anything about our condition. It seems that few GPs have had training in autism. We can dream of a world in which parents can take their children straight to an autism assesment centre without having to try to educate all the professional service providers first. I doubt if the NHS would fund this as there are too many people who may be on the autistic spectrum.
There is a strategy written, just does not mean anything yet in this part of the country. Lots of discussion and good intentions, no money to fund perhaps.
Thanks for your response. I am waiting for the government ombudsman to look at my complaint to the CCG about waiting times. My MP said there will be a response if my complaint is "valid". I suppose that will depend on the person looking at it knowing something about autism.
We have a difficult time accessing services if our GPS do not know anything about our condition. It seems that few GPs have had training in autism. We can dream of a world in which parents can take their children straight to an autism assesment centre without having to try to educate all the professional service providers first. I doubt if the NHS would fund this as there are too many people who may be on the autistic spectrum.
There is a strategy written, just does not mean anything yet in this part of the country. Lots of discussion and good intentions, no money to fund perhaps.
