Hi all , if possible i would like to know if anyone can help me with some information on diagnostic /referral times and how to pursue matters further with my local CCG.
after completing the following tests with my psychologist (MCMI-III , ASQ ,EQ ) she suggested i may have aspergers and said she would put me forward for more specialist testing.
after hearing nothing for 6 weeks i contacted who i was refereed to myself and have been told the waiting time is ...12 months , obviously - to me this is totally unacceptable as it is hindering my recovery and what treatment options are available to me.
i have read the NICE autism guidelines and under care pathway (taken from the autism quality standard) it says that
'People with possible autism who are referred to an autism team for a diagnostic assessment have the diagnostic assessment started within 3 months of their referral. '
the above also come under quality measures , this is a link to where i am looking..
pathways.nice.org.uk/.../autism
if anyone knows i would like to know how to pursue the matter (do i contact my GP or CCG and tell them 12 months is not good enough - if CCG who do i speak to? )
many thanks in advance
Hi. My son was referred for a formal diagnosis in march and we've heard nothing. He's been struggling now for 23 years. I've written to the clinic he was referred to myself at the beginning of july and still no response. I'm tearing my hair out waiting as he's suffering and I don't know how to help.
Hi. My son was referred for a formal diagnosis in march and we've heard nothing. He's been struggling now for 23 years. I've written to the clinic he was referred to myself at the beginning of july and still no response. I'm tearing my hair out waiting as he's suffering and I don't know how to help.
