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NHS Scotland

DaisyGirl

Hi,
I haven't been posting much lately because I have been completely crushed by an experience with the NHS in scotland.

Does anyone know if all NHS hospitals and staff are supposed to have autism awareness training? I have found that no staff at my health board area do. The consultants will not answer questions, they don't want me to have my Mum with me (I am an adult and have no learning disability, but my Asperger's autistic traits are very pronounced), they have no idea what autism is and despite us now having made a complaint about them and the health board apologising, I had another appointment and it seemed just the same with the doctors, althought the nurses were a lot better.

I just don't want any contact with any medical professional again. I am totally stressed out because I am still not better (they made lots of mistakes so everything I have gone through was for nothing and has to start from the beginning but I can't stand it). I just never want to see a GP or a doctor again and I don't know what to do if I get sick. I am totally terrified of the way they treat me, they just have NO IDEA about autism and they don't want to know what it is or what people like me need.

Anyone have any ideas? It seems there is no help for me. I am totally abandoned, I can't go back to these people.

Parents

  • Thanks for that link Longman.

    I just don't know what to do. I have tried to get through to the NAS helpline but it is always busy. I have no confidence in healthcare professionals any more so I feel I have no access to medical care now. They have made so many mistakes (not related to my autism) and I just don't know where to turn. All charities seem to be geared to children or don't help individuals.

    I actually think it is impossible for ASD adults to live in this NT world. No-one is prepared to understand what autism is, and the so-called autism professionals are producing poor materials for training, or are only interested in children and SEN stuff.

    I think ASD adults are totally alone and abandoned.

Reply

  • Thanks for that link Longman.

    I just don't know what to do. I have tried to get through to the NAS helpline but it is always busy. I have no confidence in healthcare professionals any more so I feel I have no access to medical care now. They have made so many mistakes (not related to my autism) and I just don't know where to turn. All charities seem to be geared to children or don't help individuals.

    I actually think it is impossible for ASD adults to live in this NT world. No-one is prepared to understand what autism is, and the so-called autism professionals are producing poor materials for training, or are only interested in children and SEN stuff.

    I think ASD adults are totally alone and abandoned.

Children
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