Help plz toilet trained son suddenly isn't anymore

Hi,

I am tearing my hair out at the moment.  My 12 yr old son who has been toilet trained since he was 3 has suddenly 3 or 4 months ago started soiling himself more and more.   He has been treated for depression and anxiety and is on 100mg of sertraline a day.  When I have asked very gently why he isn't getting to the toilet his reply was that he can't feel he needs to go.  We have been seen by the gp, who has done what he can, been referred back to the paediatrician, who is supposedly going to see him in the next month, and the psychiatrist is due to ring this evening.

He is clean and dry at night and for the most part in the mornings that he does at school........  Does any one have any ideas at all PLEASE??

Parents
  • Hello,

    A few thoughts from three different angles:

    1: sensory - defecating is a really weird, really intense experience. Some adults on the spectrum choose to go in nappies by choice as they find the sense of a void beneath them disturbing / uncomfortable. Perhaps something has triggered this feeling. (Or perhaps he is expressing his wishes but has only just felt able). 

    2: gut issues - I have really bad IBS. Sometimes my guts just stop working and it all goes wrong. On a number of occasions this has resulted in accidents and considerable distress (see my post about needles, the meltdown in the hospital was partly due to toileting anxiety)

    3: random drug side effect - ignoring the digestion for a moment. It may be a reaction to phycoactive medication. It's all about the internal senses, it's something a lot of people on the spectrum struggle with. Eg, hungry, thirsty, hot, cold, needing to use to the toilet. Many anti depression drugs mess with those senses. Ritalin for example use to interfere with my sense of heat.

    Hope that helps a bit. 

    Cheers,

    Jamie + Lion

Reply
  • Hello,

    A few thoughts from three different angles:

    1: sensory - defecating is a really weird, really intense experience. Some adults on the spectrum choose to go in nappies by choice as they find the sense of a void beneath them disturbing / uncomfortable. Perhaps something has triggered this feeling. (Or perhaps he is expressing his wishes but has only just felt able). 

    2: gut issues - I have really bad IBS. Sometimes my guts just stop working and it all goes wrong. On a number of occasions this has resulted in accidents and considerable distress (see my post about needles, the meltdown in the hospital was partly due to toileting anxiety)

    3: random drug side effect - ignoring the digestion for a moment. It may be a reaction to phycoactive medication. It's all about the internal senses, it's something a lot of people on the spectrum struggle with. Eg, hungry, thirsty, hot, cold, needing to use to the toilet. Many anti depression drugs mess with those senses. Ritalin for example use to interfere with my sense of heat.

    Hope that helps a bit. 

    Cheers,

    Jamie + Lion

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