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My beautiful boy was diagnosed with autism yesterday. I'm feeling very full of mixed emotions?????

SammyC

So yesterday was the day my son had his 2nd assessment. He is 7. I knew as his mummy that he was on the spectrum for along time and so did his school. I'm was strong + all set to push for a diagnosis for him and his future but having it confirmed has filled me with lots of emotions. I don't know how I feel if I'm honest. Alittle sad, relieved, worried for him, his future, what it holds. I keep getting tearful but I feel so guilty for feeling alittle sad, because nothing has changed, he is still the same funny, gorgeous, happy little boy he was this morning + yesterday. Feeling emotional and wondering what will happen next?? Nothing will change at school as he is already getting all the help and support he needs with his education.

  • hey!! 

    My little bit is 2.5year and was diagnosed yesterday with autism! 

    like yourself, I feel exactly the same! I have know my boy was different. From 18months but it's in black and white! It's confirmed 

    you and I wouldn't change out kids for anything! They are unique. X x x 

    be strong 

  • My 4 year old was diagnosed with Aspergers today, I feel relieved as it means I can say he has autism rather than just - well he struggles with this and that and can't do this... I no longer have to be just a neurotic parent.  We can get an IEP at school, I can have meetings and ensure things are put in place.  It gives me a lot more control.

    I'd rather he didn't have autism, but he does, it's who he is - the diagnosis doesn't change him, but it does mean I can ask the right questions and get the right help for him. 

  • Hi Sammy, well I know exactly how you feel.  Our little lad was diagnosed today and although we expected it, to see it in black and white was a very emotional experience.  We see this as doors opening for support and we are looking to get on the next available group as soon as possible.  As for what happens next well at the moment he has an IEP and we have catch ups with SENCO once in a while to check on his targets, we have also had a meeting with the local CAT team who is arranging for us to be invovled with the local support group.  As he is only 5 we will see how he transitions into year 1 at school.  He has started becoming a little disruptive in class so if this continues maybe we will enquire about a statment and additional support at school plus the doctor who diagnosed him also suggested ADD / ADHD but that cannot be diagnosed until they are at least 6.  So really as long as you feel your using every available option there really is not much else to do but monitor and liase with the school as much as you can.