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I think we've been forgotten about

misskittykat

As part of my daughters ASD assessment, we had some appointments with the OT - last time I heard from her was February when she said she'd get in touch soon to make a follow up appointment.  Tbh, she was struggling with my daughters sensory issues which are extreme.

We also had an appointment back in January with the SENS inclusion lady that specialises in sensory issues in school.  As far as I'm aware, there was going to be some discussion between the two of them to decide who was going to take my daughters issues forward but I've heard nothing from either.  

From my point of view, neither can do much to help.  Its nice to talk to someone but they can't make my daughter do what needs to be done as she has to be ready to do these things herself (go to school, wear a bra and sanitary protection etc) so is there any point in chasing them?  

What sort of input did you have regarding sensory issues once diagnosed?

Parents

  • She can get away with not wearing a bra at the moment but its fairly noticeable when she's only wearing a t-shirt and starts jumping up and down in excitement.  I've got some really nice soft seamfree ones, both tight and loose but they just sit in her draw.  I also battle with getting her to go out without smothering herself in a hoody (she hates her arms which are quite hairy) and she's only got two pairs of trousers that she will wear.  Noise and light out and about are also an issue so I try to find places to go where she can be outside in natural light.

    The lack of services in this country is disgusting and getting worse.  My neighbour (in her early 40's) had a stroke 6 months ago and can't get any help because the services she needs have all been cut.

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  • She can get away with not wearing a bra at the moment but its fairly noticeable when she's only wearing a t-shirt and starts jumping up and down in excitement.  I've got some really nice soft seamfree ones, both tight and loose but they just sit in her draw.  I also battle with getting her to go out without smothering herself in a hoody (she hates her arms which are quite hairy) and she's only got two pairs of trousers that she will wear.  Noise and light out and about are also an issue so I try to find places to go where she can be outside in natural light.

    The lack of services in this country is disgusting and getting worse.  My neighbour (in her early 40's) had a stroke 6 months ago and can't get any help because the services she needs have all been cut.

Children
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