I think we've been forgotten about

As part of my daughters ASD assessment, we had some appointments with the OT - last time I heard from her was February when she said she'd get in touch soon to make a follow up appointment.  Tbh, she was struggling with my daughters sensory issues which are extreme.

We also had an appointment back in January with the SENS inclusion lady that specialises in sensory issues in school.  As far as I'm aware, there was going to be some discussion between the two of them to decide who was going to take my daughters issues forward but I've heard nothing from either.  

From my point of view, neither can do much to help.  Its nice to talk to someone but they can't make my daughter do what needs to be done as she has to be ready to do these things herself (go to school, wear a bra and sanitary protection etc) so is there any point in chasing them?  

What sort of input did you have regarding sensory issues once diagnosed?

Parents
  • Yeah, I can relate. I am actually thinking of getting myself an MP3 player and headphones for when I go outside on my own, to help me block out the noise. I am a technophobe (apart from the Computer!), and don't really own many gadgets. But I do think headphones and a music player would help me. I enjoy listening to classical music - it calms me, and think that this would help my anxiety when out and about.

    Do you or your sons listen to music when out and about?

Reply
  • Yeah, I can relate. I am actually thinking of getting myself an MP3 player and headphones for when I go outside on my own, to help me block out the noise. I am a technophobe (apart from the Computer!), and don't really own many gadgets. But I do think headphones and a music player would help me. I enjoy listening to classical music - it calms me, and think that this would help my anxiety when out and about.

    Do you or your sons listen to music when out and about?

Children
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