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I think we've been forgotten about

misskittykat

As part of my daughters ASD assessment, we had some appointments with the OT - last time I heard from her was February when she said she'd get in touch soon to make a follow up appointment.  Tbh, she was struggling with my daughters sensory issues which are extreme.

We also had an appointment back in January with the SENS inclusion lady that specialises in sensory issues in school.  As far as I'm aware, there was going to be some discussion between the two of them to decide who was going to take my daughters issues forward but I've heard nothing from either.  

From my point of view, neither can do much to help.  Its nice to talk to someone but they can't make my daughter do what needs to be done as she has to be ready to do these things herself (go to school, wear a bra and sanitary protection etc) so is there any point in chasing them?  

What sort of input did you have regarding sensory issues once diagnosed?

Parents

  • Hi Hope,

     I so know where you are coming from with regards to the noise sensory issue, both myself and my brother suffer terribly with it, as well as my sons. One of my boys is the lad that wears ear defenders when in overload. He also uses headphones to overide extrenuous noise in a room, however this is not always helpful as you normally have to touch him to get his attention and that can be equally as alarming for him. I jump out of my skin when both the phone and doorbell go. So much so, that i've disconnected my doorbell because it's pitch is too alarming for me. Not ideal either.  I've heard others say that they have used their own noise to drown out the affects of total quiet, but i'm not sure how effective that is. I know at night i'm aware of every creek in the house, but then my sons keep me up most nights anyway.

    My hearing is so sensitive that i can hear cars approaching from miles away at night. :(

Reply

  • Hi Hope,

     I so know where you are coming from with regards to the noise sensory issue, both myself and my brother suffer terribly with it, as well as my sons. One of my boys is the lad that wears ear defenders when in overload. He also uses headphones to overide extrenuous noise in a room, however this is not always helpful as you normally have to touch him to get his attention and that can be equally as alarming for him. I jump out of my skin when both the phone and doorbell go. So much so, that i've disconnected my doorbell because it's pitch is too alarming for me. Not ideal either.  I've heard others say that they have used their own noise to drown out the affects of total quiet, but i'm not sure how effective that is. I know at night i'm aware of every creek in the house, but then my sons keep me up most nights anyway.

    My hearing is so sensitive that i can hear cars approaching from miles away at night. :(

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