How important is a diagnostic label for children?

Hi

I have a child with Asperger's Syndrome.  For us and for him this getting a diagnosis was important as it helped us have a clearer understanding of our son and for him it made him feel less alone.  He told us a few years later that he had felt lonely because he was different from everyone else.  After diagnosis he felt that he was not on his own anymore. 

I only ask this question as I wanted to see if we were alone in feeling that diagnosis was important for children.  I have had conversations recently from people within various professions who have questioned the necessity for getting a diagnostic label as it can be damaging to the child's future, possibly putting limitations on them.

I understand the arguments for not needlessly labelling children and my feeling is that if their condition, whatever it is, is having an affect on their life then it is necessary to get a dianosis so that there is a clear understanding as to why they are having these difficulties and so that support can be more easily directed to meet their needs.

In the ideal world there would be no need for a diagnosis of anything as children would have their needs met on an indivualised basis but unfortunately we do not seem to be anywhere near living in this world.

Let me know your views and opinions.  I welcome comments on either side of the argument.

 

Parents
  • Hi there,

    I am in agreement with you that getting a diagnosis is important. My reasons for thinking this is for ourselves to know that we are not completely useless parents and there is actually a reason why our son behaves as he does and also for him to as you say not feel so lonely and isolated, I feel it can only be helpful to him to know he is not the only one and other people are going through the same frustrations as him.

    My son is eight now and we still haven't had a proper diagnosis, we have just been told as I said in my last posting that he has definite aspergers tendancies and will be assessed again when he starts senior school. I don't know what your experience is but here there seems to be very little help or advice, we are left to get on with it which is why I've joined this forum.

    Thank you.

Reply
  • Hi there,

    I am in agreement with you that getting a diagnosis is important. My reasons for thinking this is for ourselves to know that we are not completely useless parents and there is actually a reason why our son behaves as he does and also for him to as you say not feel so lonely and isolated, I feel it can only be helpful to him to know he is not the only one and other people are going through the same frustrations as him.

    My son is eight now and we still haven't had a proper diagnosis, we have just been told as I said in my last posting that he has definite aspergers tendancies and will be assessed again when he starts senior school. I don't know what your experience is but here there seems to be very little help or advice, we are left to get on with it which is why I've joined this forum.

    Thank you.

Children
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