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Undiagnosed

NAS10051

Hi,

I am new to this site and wondered if anyone has had a similar experience to my own.

My 5yr old son has been on a waiting list for asd assessment for a year now. We have recently started to get help for his needs through a disability team. We have recieved help through SLT and education psycologist and are awaiting a statement for him at school.

I recently rang the team that carries out assessment for asd and they said my son still has a long wait for diagnosis ( i think they are talking years). Has anyone else had a similar experience? I find it difficult to work out my sons level of understanding at times and on bad days when I'm feeling the strain I start to really doubt my own parenting. I wondered if diagnosis would give me a clearer understanding of his needs.

Parents

  • The NICE Guidelines are not yet law.  They should be following them as they are NHS guidelines but they aren't enforceable yet.  I think there are moves to join children's autism rights with adults as per the Autism Act.

    Having said that, the more a parent shows their NHS service that they are well-informed the more they are likely to take you seriously.  They will not want to be seen to be breaching best practice guidelines.

    Look at how services ignore the Autism Act - which is why now Think Autism has been put in place, let's hope it works.

Reply

  • The NICE Guidelines are not yet law.  They should be following them as they are NHS guidelines but they aren't enforceable yet.  I think there are moves to join children's autism rights with adults as per the Autism Act.

    Having said that, the more a parent shows their NHS service that they are well-informed the more they are likely to take you seriously.  They will not want to be seen to be breaching best practice guidelines.

    Look at how services ignore the Autism Act - which is why now Think Autism has been put in place, let's hope it works.

Children
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