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Undiagnosed

NAS10051

Hi,

I am new to this site and wondered if anyone has had a similar experience to my own.

My 5yr old son has been on a waiting list for asd assessment for a year now. We have recently started to get help for his needs through a disability team. We have recieved help through SLT and education psycologist and are awaiting a statement for him at school.

I recently rang the team that carries out assessment for asd and they said my son still has a long wait for diagnosis ( i think they are talking years). Has anyone else had a similar experience? I find it difficult to work out my sons level of understanding at times and on bad days when I'm feeling the strain I start to really doubt my own parenting. I wondered if diagnosis would give me a clearer understanding of his needs.

Parents

  • NAS10051 said:
    Hi,

    I am new to this site and wondered if anyone has had a similar experience to my own.

    My 5yr old son has been on a waiting list for asd assessment for a year now. We have recently started to get help for his needs through a disability team. We have recieved help through SLT and education psycologist and are awaiting a statement for him at school.

    I recently rang the team that carries out assessment for asd and they said my son still has a long wait for diagnosis ( i think they are talking years). Has anyone else had a similar experience? I find it difficult to work out my sons level of understanding at times and on bad days when I'm feeling the strain I start to really doubt my own parenting. I wondered if diagnosis would give me a clearer understanding of his needs.

    This is the time to start quoting requirements to them and putting complaints in:

    http://www.nice.org.uk/nicemedia/live/13572/56428/56428.pdf

    "1.5 Autism diagnostic assessment for children and young people

    1.5.1 Start the autism diagnostic assessment within 3 months of the referral to the autism team."

    If you show them you know your rights they should start listening.

Reply

  • NAS10051 said:
    Hi,

    I am new to this site and wondered if anyone has had a similar experience to my own.

    My 5yr old son has been on a waiting list for asd assessment for a year now. We have recently started to get help for his needs through a disability team. We have recieved help through SLT and education psycologist and are awaiting a statement for him at school.

    I recently rang the team that carries out assessment for asd and they said my son still has a long wait for diagnosis ( i think they are talking years). Has anyone else had a similar experience? I find it difficult to work out my sons level of understanding at times and on bad days when I'm feeling the strain I start to really doubt my own parenting. I wondered if diagnosis would give me a clearer understanding of his needs.

    This is the time to start quoting requirements to them and putting complaints in:

    http://www.nice.org.uk/nicemedia/live/13572/56428/56428.pdf

    "1.5 Autism diagnostic assessment for children and young people

    1.5.1 Start the autism diagnostic assessment within 3 months of the referral to the autism team."

    If you show them you know your rights they should start listening.

Children
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