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Xyla Digital Therapies

Expecto_Patronum

This might be a long shot but I'm just wondering if anyone has ever had anything to do with Xyla Digital Therapies? I've been offered treatment through them rather than on NHS for my mental health due to the wait times (I've already been waiting 3 or 4 years). I had been referred for step 4 psychology services on NHS originally and looking at Xyla's website  I'm concerned they can't provide the needed treatment. It does say they would assess and decide on the most suitable treatment but the only treatments actually talked about on the website is CBT. I've already had this, it didn't work and I've since been told it's ineffective for neurodiversity so I definitely don't want that. But I also don't want to turn down a potentially useful service, especially as they have a greater flexibility of appointments which would be useful due to my working hours. I have 7 days to respond and am trying to get though to mental health NHS to get more information. It concerns me the people I'll be able to speak to are admin staff and won't have an in-depth understanding of what I may need in order to help me make an informed decision so I'm a bit stuck on what to do.

Parents
  • Expecto_Patronum said:
    the only treatments actually talked about on the website is CBT. I've already had this, it didn't work

    From what I have read CBT needs to be significantly adapted to work for autists but it does seem quite effective once "tuned" correctly for your autistic traits.

    There is an article covering some of this here: https://neurolaunch.com/cognitive-behavioral-therapy-for-autism/

    It may be worth asking the supplier how they adapt their CBT for autists to see if they even understand the challenges here, and if they just waffle on rather than being able to explain how it is adapted then you can be fairly sure they haven't got a version that will work for you.

  • in reply to Iain

    Thank you. Yes I have been told it can be adapted but I'd rather avoid it if possible. I don't really trust most people that say they have neurodivergent knowledge.

    I managed to get through to mental health and they have said that they will get someone that knows more to ring me back and have assured me they will not discharge me before then.

    The woman I spoke to thought that they must offer more than CBT because step 4 itself doesn't offer CBT, that is step 3 and this is an alternative to step 4. But she didn't want to promise something without knowing the full details.

    It still makes me somewhat wary as if you other a range of treatments, why would you not advertise this on your website. Why only describe CBT. Seems counterproductive if you want to attract patients. They are a private company so won't just rely on the patients the NHS is sending them.

  • in reply to Expecto_Patronum
    Expecto_Patronum said:
    It still makes me somewhat wary as if you other a range of treatments, why would you not advertise this on your website.

    Because some of these private providers offer different services when under contract to the NHS than they do to their own clientele.  They also vary their services from area to area. 

    In my opinion it isn't right.  We should all have a level playing field, but that is the system these days, and until someone deals with the injustice in it, us mere mortals have to suffer it. 

Reply
  • in reply to Expecto_Patronum
    Expecto_Patronum said:
    It still makes me somewhat wary as if you other a range of treatments, why would you not advertise this on your website.

    Because some of these private providers offer different services when under contract to the NHS than they do to their own clientele.  They also vary their services from area to area. 

    In my opinion it isn't right.  We should all have a level playing field, but that is the system these days, and until someone deals with the injustice in it, us mere mortals have to suffer it. 

Children
  • in reply to overwhelmed & underwhelmed ( O & U )

    Indeed. In all honesty, I'm not optimistic which ever path I choose. I had a lovely therapist last time and she really did try to make the therapy work for me but she didn't have the knowledge needed with regards to neurodiversity. The way the system works I had little choice but to finish that bout of therapy and be referred up. Unfortunately, the way the system works (at least in my area) they don't just refer up, they insist that they discharge you and then you get referred and go back to the beginning of a waiting list. It's a pretty sucky system.