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Xyla Digital Therapies

Expecto_Patronum

This might be a long shot but I'm just wondering if anyone has ever had anything to do with Xyla Digital Therapies? I've been offered treatment through them rather than on NHS for my mental health due to the wait times (I've already been waiting 3 or 4 years). I had been referred for step 4 psychology services on NHS originally and looking at Xyla's website  I'm concerned they can't provide the needed treatment. It does say they would assess and decide on the most suitable treatment but the only treatments actually talked about on the website is CBT. I've already had this, it didn't work and I've since been told it's ineffective for neurodiversity so I definitely don't want that. But I also don't want to turn down a potentially useful service, especially as they have a greater flexibility of appointments which would be useful due to my working hours. I have 7 days to respond and am trying to get though to mental health NHS to get more information. It concerns me the people I'll be able to speak to are admin staff and won't have an in-depth understanding of what I may need in order to help me make an informed decision so I'm a bit stuck on what to do.

Parents

  • I'd be wary of accepting something I wasn't fully aware about from the outset.

    Recently I undertook a course for a mental health condition provided by NHS Secondary Care.  I should have been given a follow-up (in-house) but due to the waiting times, this ended up being provided by a private psychiatrist on behalf of the NHS.  This led to complications, because I wasn't aware of the change, and because the psychiatrist didn't appear fully appraised of the background.

    Anyway, I tried to find out a bit about this person ahead of the telephone follow-up, and it provided some reassurance.  What I hadn't realised was that by accepting the appointment by a private provider, I was - in effect - transferring my care to them, and putting my mental health in the hands of someone I didn't know.  I wished I hadn't done it. 

    This psychiatrist reviewed the course I referred to and pronounced there was nothing else on offer subsequently.  She reeled off a list of voluntary options I might consider and had I not protested (and ultimately succeeded after making myself ill in the process) she'd have been happy to close the case - which I believe may well have been her remit anyway (reducing the numbers waiting for treatment).  Now I'm back awaiting NHS treatment again, on said waiting list.

    I'd strongly suggest you speak to your NHS provider before accepting anything in the private sector - if only to find out what it entails, and what it means for your on-going care.  What would happen if you were unhappy, would you have recourse in the process?  I realise it is tempting, especially after such a long wait, but I'd say all the more reason to be exceptionally careful. 

Reply

  • I'd be wary of accepting something I wasn't fully aware about from the outset.

    Recently I undertook a course for a mental health condition provided by NHS Secondary Care.  I should have been given a follow-up (in-house) but due to the waiting times, this ended up being provided by a private psychiatrist on behalf of the NHS.  This led to complications, because I wasn't aware of the change, and because the psychiatrist didn't appear fully appraised of the background.

    Anyway, I tried to find out a bit about this person ahead of the telephone follow-up, and it provided some reassurance.  What I hadn't realised was that by accepting the appointment by a private provider, I was - in effect - transferring my care to them, and putting my mental health in the hands of someone I didn't know.  I wished I hadn't done it. 

    This psychiatrist reviewed the course I referred to and pronounced there was nothing else on offer subsequently.  She reeled off a list of voluntary options I might consider and had I not protested (and ultimately succeeded after making myself ill in the process) she'd have been happy to close the case - which I believe may well have been her remit anyway (reducing the numbers waiting for treatment).  Now I'm back awaiting NHS treatment again, on said waiting list.

    I'd strongly suggest you speak to your NHS provider before accepting anything in the private sector - if only to find out what it entails, and what it means for your on-going care.  What would happen if you were unhappy, would you have recourse in the process?  I realise it is tempting, especially after such a long wait, but I'd say all the more reason to be exceptionally careful. 

Children
  • in reply to overwhelmed & underwhelmed ( O & U )

    I've emailed the NHS psychology department and the treatment provider offered to try and get more information. Trying to be cautious but I have 7 days to respond or they'll discharge me - such a helpful way to treat people with anxiety. I've tried to ring as well but so hard to get through to mental health on NHS. I work a shorter day tomorrow so can commit some more time to trying to ring on repeat til they answer. So far all I've got though to is a very obnoxious beeping that hurt my ears.