camhs being awkward with my request

My daughter is 16 and been under camhs on and off since she was about 8. She could write a book on CBT as this is all they've done. She was referred to the eating disorder clinic in August last year they diagnosed her with clinical depression, eating disorder (fear of food) anxiety , school phobia.  She also self harms. I've always told her councillors that I felt she was autistic but they said she wasn't.  Now her brother has a referral for autism, I sent a written  letter to them insisting on a referral for her using the nice guidelines.  They have responded by sending me 2 Australian scale questionnaire one for myself to complete and one for school.  She's not been attending school for 2 years (to which they know) she is in part time hospital school.  So who do I ask to fill out the other form? 

Parents
  • hi i have recently received a dianosis of aspergers for my 14 yr old daughter. her problems sound so so similar to your daughters and i had been fobbed off for a few years. I pushed and pushed fortunately or unfortunately her mental health took a serious downward spiral so we were re referred to the consultant. I sat and wrote everything down that i could think of that i considered to be traits or quirks. It took me a few weeks but i did it. write a letter demanding she is tested and state your reasons why & include a copy of your list!! also find out who your schools case worker is for educational needs and write to them too! demanding she is tested or looked into for a statement. I did get my 2nd opinion referral and after the appt i was told yes they think she has aspergers!!! at last!! The list i wrote was a major factor in getting that referral. Only you know your child and your information is what will get you there. Camhs only see them for 40 mins every 2-4 weeks and girls are so good at hiding it, it wont get noticed in those sessions. For years i had recorded on file 'shows some traits but not considered enough for referral then along came my letter! they dont want to read pages of waffle like this :) do it in bullet points every little quirk u can think of that she has or has ever had, include the self harm! this is a major safety issue and the depression and inability to function in school. It is hard work but once you get the wheels turning it can be quick. took 3 months from referral for me. she has also been diagnosed with Bi Polar within the same time frame so an awful lot to take in. I am now in the process of securing a statement of educational needs for her to see if i can get her back into school full time as her gcse's start in september. Its not fair but we have to fight tooth and nail to get anywhere. start making your list! and good luck I hope you get results for your daughters sake :)

Reply
  • hi i have recently received a dianosis of aspergers for my 14 yr old daughter. her problems sound so so similar to your daughters and i had been fobbed off for a few years. I pushed and pushed fortunately or unfortunately her mental health took a serious downward spiral so we were re referred to the consultant. I sat and wrote everything down that i could think of that i considered to be traits or quirks. It took me a few weeks but i did it. write a letter demanding she is tested and state your reasons why & include a copy of your list!! also find out who your schools case worker is for educational needs and write to them too! demanding she is tested or looked into for a statement. I did get my 2nd opinion referral and after the appt i was told yes they think she has aspergers!!! at last!! The list i wrote was a major factor in getting that referral. Only you know your child and your information is what will get you there. Camhs only see them for 40 mins every 2-4 weeks and girls are so good at hiding it, it wont get noticed in those sessions. For years i had recorded on file 'shows some traits but not considered enough for referral then along came my letter! they dont want to read pages of waffle like this :) do it in bullet points every little quirk u can think of that she has or has ever had, include the self harm! this is a major safety issue and the depression and inability to function in school. It is hard work but once you get the wheels turning it can be quick. took 3 months from referral for me. she has also been diagnosed with Bi Polar within the same time frame so an awful lot to take in. I am now in the process of securing a statement of educational needs for her to see if i can get her back into school full time as her gcse's start in september. Its not fair but we have to fight tooth and nail to get anywhere. start making your list! and good luck I hope you get results for your daughters sake :)

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