ASD

hi there can anyone please give me some advice my son was diagnosed with ASD last sept he left mainstream school last november, since going to special school he has just had a CAF  and they are questioning his diagnosis of ASD  , my son has had walking difficulties since  he could stand  and kept falling down , he never baby babbled are mixed well at school ect  , at the age of 8 had went through a dcd clinic which diagnosd him with global motor skill diff and short term memory , and aknowledged his left sided weakness but would not give a diagnosis in writing , only said he thought he had dysparxia n hypermobile joints, then he would see him in another 12mnths, i asked my gp for a 2nd opinion which i recieved out of the borough he was diag with unilatrall cp the consultant  then last year gave him a a additional diagnosis of asd  now the school phyciatrist is questioning it and looks like she wants to do assessment hrself?  then at the caf the ot that saw my son at the dcd clinic assesed him for a hour are so at school and said he has no problems ,initiated play, spoke clearly, walked up 2 flights of stairs, listened and done what ws asked of him no behavouaral problems at all , could fasten his shoe laces , even though not tight to keep his shoe on, i didnt agree i couldnt believe it i never see this at all, she then went on to say it was all anxietys not ASD, and that she didnt agree with his diagnosis as she felt it had been made of the cuff as her side have to go through numerouse assesments before giving a diagnosis....  considering she never new my son till he was gone 8 and has never had any involvment with him since then i am annoyed in respect of her  x he wears a afo on his left leg for support and is awaiting his botox injections,his teachers say he is a v well mannered boy who they never see anxietys, at all  ... at home he screams shouts, hits me and his dad and his siblings , growls at us in a robot voice, constanly is argumentative , repeatedly asks the same questions over and over again, at night does not like to sleep , has fears and will not sleep alone ,and  is compelled to tell everyone what he is thinking individually and at night awakes and does the same wakes everyone up independendently to tell them what he wants them to hear, he cannot abide crowds , supermarkets ect gets angry and fearfull,  and becomes aggitated and wants to go , leave ,academically functioning still around a 5yrold, he doesnt understand jokes, sarcasm, and takes everything literally ect ect  i rang his consultant as i was very upsett by this she was so annoyed , now i have a app at home with the dr phsyciatrist coming out to assess my son at home from the cyps and school !! i am not having my son put through assesments again to please others this is just not fare and very upsetting to us all  can anyone help me please xxxxxx

Parents
  • Hi - I don't know when your son will be seen, but if you don't already, keep a diary of events at home + if he doesn't mind, video him when he is upset.  Any letters you have or can get about his asd diagnosis shd also be helpful.  Have a look via the home page about diagnosis - some posters also recommend the ipsea site.  Good luck, I do feel for you with all this going on.

Reply
  • Hi - I don't know when your son will be seen, but if you don't already, keep a diary of events at home + if he doesn't mind, video him when he is upset.  Any letters you have or can get about his asd diagnosis shd also be helpful.  Have a look via the home page about diagnosis - some posters also recommend the ipsea site.  Good luck, I do feel for you with all this going on.

Children
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